Expanding Research on Muscular Dystrophy (H.R. 594)
Do you support or oppose this bill?
What is H.R. 594?
(Updated July 13, 2017)
This bill was enacted on September 26, 2014
This bill would amend the Public Health Services Act to revise and expand the National Institutes of Health (NIH) muscular dystrophy research program. Specifically, H.R. 594 would increase the types of muscular dystrophy researched by the NIH, and ensure that NIH shares new data with other muscular dystrophy research centers. The Center for Disease Control would be responsible for gathering data on different population groups affected by muscular dystrophy.
Argument in favor
Strengthens research that could dramatically increase the lives of more than 100,000 individuals living with muscular dystrophy.
Argument opposed
Excessive funding for what amounts to data sharing between research programs.
Impact
People with muscular dystrophy, the National Institute of Health, and the Center for Disease Control.
Cost of H.R. 594
The CBO estimates this cost based on H.R. 594's requirement to increase the scope of research by the National Institutes of Health and the Centers for disease Control and Prevention to include additional forms of muscular dystrophy. The cost also comes from the re-authorization of previous surveillance, research and education measures related to the disease.
Additional Info
In Depth:
A second part of this bill outlines measures to bolster the
effectiveness of the Muscular Dystrophy Coordinating Committee (MDCC).
In addition to conducting studies on independent living programs and
clinical treatment, the MDCC would evaluate new forms of therapy that
could mitigate the harm caused by muscular dystrophy.
Media:
Rep. Michael Burgess Press Release
(Photo Credit: Wikimedia user Dr. Edwin P. Ewing, Jr)
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