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ACTIONS
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February 2
Join us at this year's Butterfly Bash as we honor the Ion Channel Epilepsy Clinic from Miami Children’s Hospital for their dedication and commitment in caring for chil... See More
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October 5, 2011
Piper’s Song, Concert For A Cure will give people the opportunity to show their support for Piper and others facing the considerable challenges of DS & related epilepsies. Monies raised will go to the Dravet Syndrome Foundation's research grant program. This unique event includes music, appetizers, c... See More
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May 9, 2011
Join the DSF in raising research money for a promising new project OPKO RESEARCH PROJECT What is the purpose of this research project? More than 75% of children who have been diagnosed with Dravet syndrome have a defective SCN1A gene. As a result, the defective gene is not producing enough fun... See More
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April 28, 2011
The link did not come through with our previous bulletin. The link to vote is: http://www.vivint.com/givesbackproject/charity/45 Please vote once per day through June 11th and help the DSF win $250,000 towards our next research grant!!! If we are in the top 20 at the end of Phase I, there wi... See More
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April 28, 2011
Everyone, PLEASE take a minute to "endorse" the Dravet Syndrome Foundation in this contest each day through June 11th. We have to be in the top 20 to go to finals and can win up to $250,000! Vote once per day. Important research announcement next week and this money could be a great help for this next... See More