Hope for our Hannah!

I wanted to thank our 2500+ members for joining in the fight to save our daughter, Hannah's life, in our "Hope for our Hannah!" cause. We will be closing this cause and relocating our efforts to our Little Miss Hannah Foundation at https://www.facebook.com/pages/Little-Miss-Hannah-Foundation/259855680... See More

Hannah Ostrea, born July 25, 2008, passed away peacefully on December 4, 2011, surrounded by her family following a lifelong battle against Neuronopathic Gaucher’s Disease. In our hearts, she is now free from the prison of this disease and is able to run, play, and be able to dance to her favorite son... See More

Hannah is sleeping peacefully right now. The combination of Valium-Methadone-Klonopin-Baclofen-Tegretol and chloral hydrate when needed is starting to work to keep her comfortable. We are down to using the chloral just a few times a day now instead of every 4 hours on the dot. We may need to up he... See More

Although she seems to be losing some more fine motor skills, Hannah is still smiling and happy. She loves her Mickey and Minnie mouse, her iPad with the tons of great special needs apps, and reading her big board and foam books. Hannah was also granted a wish with Make-A-Wish, and we are currently... See More

I realize it has been almost a year since I have last updated everyone here on how my Little Miss Hannah has been doing as well as our fight against Gaucher's Disease type 2 and type 3. It has been a really rough 6 months. Hannah was hospitalized back in mid-May for pneumonia and had to be intubat... See More