What parents, caregivers, schools, loved ones NEED TO KNOW!!!

Genetic Disease Profile: Sickle Cell Anemia For more about the gene that causes sickle cell anemia, see the HBB Gene Profile. The following was adapted from NIH Publication No. 96-4057. Sickle Cell Timeline 1910 - Herrick provides the first formal

Our journey continues.........

Tonight I was taken back when I realized It's been almost a year since I posted anything on my bulletin. That's how tremendously well Shaniah has been doing since our move to Florida. A year ago, hooked up to an intravenous blood tranfusion, Shaniah slept as

Our journey with Hydroxyurea begins!!!

On January 13th 2009 I agreed to start Shaniah on this amazing drug under the direction on her Hematologists' at Schneider Children's Hospital. I had read enough about the side effects and decided that the benefits outweighed them. It would take a week to see

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