FightSMA (Andrew's Buddies)

Attention to families living in Congressman Ralph Hall’s district (Texas’ 4th district): we need your help, and as soon as possible. If you or someone you know lives in Congressman Hall’s district, please contact Caroline Gibson immediately: carolinegibson@fightsma.com or 804-515-0080. We need Mr. ... See More

Gwendolyn Strong Foundation Is Campaign Partner RICHMOND, VA - Richmond-based FightSMA announced today a new fundraising campaign for spinal muscular atrophy (SMA) gene therapy, “Realizing the Dream.” FightSMA is collaborating with the Santa Barbara–based Gwendolyn Strong Foundation, to form a bi-c... See More

On Tuesday, April 27th, attendees of the 2010 FightSMA Annual Conference in Washington, DC visited over 70 Congressional offices on behalf of the SMA Treatment Acceleration Act. Families and friends shared information about spinal muscular atrophy (SMA) and the SMA Treatment Acceleration Act (HR 2149,... See More

April 20, 2010 Greetings SMA families, researchers and friends: Thank you for all you have done to increase awareness and attention towards efforts to accelerate treatment and cure discovery for Spinal Muscular Atrophy (SMA). We are especially grateful to all those who have taken the time t... See More