Some of you may know I've been a facilitator for MDA's ALS group for over a decade now. Some of the bravest folks I've ever met, pals and caregivers both!
I have FSHD an adult form of Muscular Dystrophy. There are supposed to be support groups, I cannot wait to meet someone who also has FSHD. There is no current treatment for FSHD. I want research to always have enough money to come up with a treatment so we can pick up our lives where we left off.
Why is this campaign important to you?
Some of you may know I've been a facilitator for MDA's ALS group for over a decade now. Some of the bravest folks I've ever met, pals and caregivers both!
In honor of my grandson.Frankie Frankie Mastrodonato.
In Honor Of My Deceased Daughter Gabrielle Dominique Gast.
I have FSHD an adult form of Muscular Dystrophy. There are supposed to be support groups, I cannot wait to meet someone who also has FSHD. There is no current treatment for FSHD. I want research to always have enough money to come up with a treatment so we can pick up our lives where we left off.
My grandmother died from this disease...Love u Maw Maw RIP <3.