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would you like to SEE how Sophie's doing?

check out our channel on! we add videos here all of the time- including videos of the dance party from Sophia's second birthday! watch and enjoy watching Sophie grow up and grow strong!!!

Sophia is 2 today!

Happy Birthday Sunshine!!! Also- May is Prader-Willi Awareness Month. Who knew? Now you do! WASHINGTON, D.C. – December 10, 2009 – House Resolution 55, introduced in the House of Representatives by Reps. Ed Royce (R-CA) and Jane Harman (D-CA), passed today…Read More

What I've learned in 2009...

1. Never underestimate your child- no matter what they tell you. 2. The holidays are a truly magical time. 3. Don't ever be afraid to ask for what you need- you just might get it! As we get ready to embark upon 2010, I wanted to put a bug in your ear... if…Read More

almost half way there!

as of today we have raised $235 towards our $500 goal. thank you so very much to all who have donated so far. we are so lucky to have such a wonderful community of folks who are willing to help us, even just a little bit, when times are so tough for all. we…Read More

sophia needs your help!

i just got a call from sophia's caseworker that coordinates her therapies. she stated that she had gotten a letter from the department of human services that said that we need to pay them $500 in order to have her current equipment requests filled. right now,…Read More

big news!

there's inching, everyone! check out the video on my blog!!! a small scoot for a baby- a giant step for sophie-kind.


although many of you are linked to me as friends and have seen that i have been posting to my blog, there are some of you that are not. that is why i wanted to send an email to let you know that i am trying to write, regularly, about my experiences with miss…Read More
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