A Child's Rare and Undiagnosed Illness: A Mother's Journey

Hi Everyone! I am going to be making my radio debut on 5/22. Please tune into the Healthcare Whisperer show on Blog Talk Radio to hear me talk about my son, Cal and my advocacy work for patients with rare and undiagnosed diseases. I encourage your to call in…Read More

Tell your U.S. Representative to Co-Sponsor CAL's Bill - H.R. 1591

CALs Bill has been introduced into the House for the 3rd time. In order for it to get out of the sub-committee where it has died the previous years it needs at least 100 House Representatives to sign on as co sponsors. The House Representatives will not see…Read More

Chairman John Carter introduces Undiagnosed Diseases Bill

WASHINGTON, D.C. – Congressman John Carter (R-TX31) reintroduced the Charles August Long Undiagnosed Diseases Research and Collaboration Network Act of 2013 to Congress Wednesday, April 17.   The bill, HR 1591, would help individuals and military Service…Read More

Support the CAL Undiagnosed Diseases Research & Collaboration Network Act

During the week of April 9, 2013 Representative John Carter (R-TX) is planning to re-introduce my son's bill - The CAL Undiagnosed Diseases Research & Collaboration Network Act. Prior to the re-introduction, other Representatives will be sought to sign…Read More

Project C.A.L. Update - New Cosponsor for H.R. 2671 - The CAL Undiagnosed Diseases Research & Collaboration Network Act of 20ll

Representative Peter King (NY-3) has agreed to co-sponsor Cal's Bill - H.R. 2671 - CAL Undiagnosed Diseases Research and Collaboration Network Act of 2011!

Project C.A.L. Update - New Cosponsor for H.R. 2671 - The CAL Undiagnosed Diseases Research & Collaboration Network Act of 20ll

Representative Michael McCaul has agreed to co-sponsor Cal's Bill. Rep. McCaul is co-founder of the Childhood Cancer Caucus & has just proposed leg. that will incentivize pharmaceutical companies to develop new drugs for rare pediatric diseases, such as…Read More

Project C.A.L. Update - H.R. 2671 referred to Subcommittee

H.R. 2671 - CAL Undiagnosed Diseases Research and Collaboration Network Act of 2011 has been referred to the Subcommittee on Health. Now we need to make sure that the Bill gets a hearing. You can help make sure that happens by writing your Representative and…Read More
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