I'm 49 years of age and have known that I have SLE for 24 years now. It affects me in so many ways. I would love for someone to find a cure for this before I end up dead too. It kills so many people but its not out in the world properly. You hear more about other diseases, which is a shame as this is just as bad as many others. I hope and pray that none of my 4 children or my 4 grandchildren inherit this from me. I try hard to live life to the fullest in every way that I possibly can. I work for Qld Health in the HACC unit and love my job but I can't see me lasting to much longer at this.I have the most amazing and supportive husband that anyone could ever wish for too.