Brain Injury Network - ABI Advocacy by and for ABI Survivors

Please help brain injury survivor advocates raise public awareness about issues of importance to our survivor community. Many survivor... Read more

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Please help brain injury survivor advocates raise public awareness about issues of importance to our survivor community.

Many survivors of ABI (acquired brain injury) from brain illness, stroke, trauma (tbi), tumor and other causes are out of work, out of insurance, out of money and out of options due to the catastrophe of having sustained an acquired brain injury. Many have been ignored, discarded, and/or forgotten by society. For starters, even minimal survival is at stake. While the institutions and service providers look for funding for their programs, treatments, research, clinical trials, etc., day-to-day life is quite a struggle for survivors. Survivors have medical issues to deal with, but also cognitive issues, financial issues, etc. and their lives are quite difficult on many fronts. This is our predicament. There are many out there who "speak for us", but we are entitled to speak for ourselves. We must alert society to what we perceive to be our issues. We are bringing the broad constellation of problems for our community to the forefront, in order that better and more wide-ranging solutions will be formulated and implemented.

1. All programs, whether medical or nonmedical, must be operated with protocols that ensure the safety of survivors.

2. Funding is required not just for medical programs, such as medical research and clinical trials, but also "community reintegrative" programs.

3. Survivors often need "community supports" to help them in their day-to-day living and there is a scarcity of programs and funding for that.

4. We have developed public policy recommendations on numerous topics of importance to the brain injury survivor community.

5. Please view our position statements at http://www.braininjurynetwork.org