I was born in 1952 & at 9 days old had 5 complete blood transfusions due to being a Rhesus baby. That was the start of a lifetime of serious ill health which for many years was meant to have M.E. until it was established following total respiratory failure, that I have Mitochondrial Myopathy with Complex IV deficiency which means I could die at any time. I do look after myself so that I always look my best, especially having lost 120lbs in weight. I have been bedbound since 1996 & need care 24/7.