Tammie Hefty
Tammie Hefty campaign leader

We have recently welcomed several new families to the International WAGR Syndrome Association. The response from our current families to the new families, and vice versa is always amazing and inspirational. To go from the feeling of fear and confusion of receiving the WAGR diagnosis, to being welcomed into a family full of information, suggestions and encouragement is a life-altering experience.
The more we spread awareness of WAGR/11p Deletion Syndrome, the easier it will be for new families to find the IWSA.

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