We have recently welcomed several new families to the International WAGR Syndrome Association. The response from our current families to the new families, and vice versa is always amazing and inspirational. To go from the feeling of fear and confusion of receiving the WAGR diagnosis, to being welcomed into a family full of information, suggestions and encouragement is a life-altering experience.
The more we spread awareness of WAGR/11p Deletion Syndrome, the easier it will be for new families to find the IWSA.
Supporters are now helping to
By liking our page, the IWSA can become more visible, thereby creating more opportunities for families around the world with WAGR/11p Deletion to find the support they need from other families who have "been there".
We are fundraising for International Wagr Syndrome Association. Join us in supporting them.
Viewed 34 times