The most important info in this video was lost, but it overviews our fundraising needs that is being conducted by both the researchers and parents. Current research is in jeopardy!
How you can help
Our daughter Vanessa, is one of 100,000 births that result in 11q Deletion also known as Jacobsen Syndrome. We are the only family affected in Maine and one of less than 200 cases to have been reported worldwide. 11q Deletion is a rare congential disease resulting from the deletion of the terminal region of chromosome 11, causing intellectual disabilities, behavioral issues, distinctive facial…
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