Shannon Butalla
Shannon Butalla donated

Share how GFPD has impacted YOUR loved one with Peroxisome Biogenesis Disorder

The Global Foundation for Peroxisomal Disorders has reached over 200 families around the globe who have come to know the harsh realities of Peroxisome Biogenesis Disorders.

Do you know a friend or family member whose child has a Peroxisome Biogenesis Disorder (also called Zellweger Syndrome, Neonatal Adrenoleukodystrophy, and Infantile Refsum Disease)? If so, how has the GFPD community benefitted them? What else could be done to help these individuals/families?

Share your stories, photos, videos, and suggestions of how GFPD has helped and what more can be done to help.


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