Tammie Hefty
Tammie Hefty campaign leader

Action is Exciting

I love to see the number of new people to our cause. Thanks to all who have joined and continue to spread the word. I was just talking to a pharmacist today about WAGR/11p Deletion Syndrome. He (being the Sunday morning pharmacist) was baffled that I was picking up high blood pressure meds for my 8 year old. As I explained her history, he was baffled. How did we know that at 15 months old she had Wilms Tumor? Well, we knew she had WAGR, so we had been looking for it. It's ALL about knowing.
So spread the word, and others will know more too, and we'll continue to get diagnosis earlier on which will lead to better health and better lives for our kids!
Thanks, Tammie

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