Shannon Butalla
Shannon Butalla donated

Thank you from the GFPD Family & Professional Community!

Thank you to ALL who supported GFPD with our first Family & Scientific Conference. It was a huge success, and all of our participants felt an amazing sense of community & support amongst the families & professionals that attended!

It is my hope that the momentum continues, allowing GFPD to do more for families & researchers in the years to come. With your help, we will find better ways to care for the children impacted by these devastating disorders. Already, we have made tremendous impact, offering families hope to a better future for their children by:

-providing families' access to world renowned physicians & scientists
-hosting our first family & scientific conference with 120 attendees
-supporting current research initiatives & grants
-facilitating an equipment exchange program
-providing community between families with an online family support group
-creating a worldwide family registry
-granting $15,000+ in assistance requests since January 2011
-receiving recognition from The National Organization for Rare Disorders

We appreciate you taking the time to get to know more about our children and families. It is our hope to move GFPD to the next level to provide even more support to those who must learn about Peroxisome Biogenesis Disorders.

For a glimpse of some of the children impacted by PBDs, you can view our opening conference video at http://www.youtube.com/watch?v=nDgwSc0M8nQ. For more information on Peroxisome Biogenesis Disorders, please visit our website, www.thegfpd.org.

With sincere appreciation,

Shannon Butalla, President
The Global Foundation for Peroxisomal Disorders
[email protected]

to comment