Christy Arndt Greeley
Christy Arndt Greeley campaign leader

CRN Funds New Research Grants

 The Cystinosis Research Network is happy to announce that it will provide funding for three new research projects as a result of it's 2009 Call for Proposals. These studies represent an additional $250,000 in research funding, putting CRN's current research funding commitment at $1.3 million dollars.

The three new projects funded are:

"Feasibility of Cystinosin Replacement Therapy in Cystinosis", Dr. Jess Thoene, University of Michigan, Ann Arbor, MI

"Quality of Life in Cystinosis Patients", Dr. Ewa Elenberg, Texas Children's Hospital, Houston, TX

"Proposal for a North American Cystinosis Research Platform", Dr. Paul Goodyer, Montreal Children's Hospital, Montreal, Canada, and Dr. Rick Kaskel, Children's Hospital at Montefiore, Bronx, NY

We welcome Dr. Elenberg, Dr. Kaskel, and Dr. Goodyer as new CRN funded investigators, and we look forward to our continued relationship with Dr. Thoene.

We also wish to thank the CRN Scientific Review Board for their thoughtful review and recommendations regarding this years' submitted proposals.

Please look for more information about these studies, as well as updates on all ongoing projects, on the CRN website at The Fall/Winter edition of The Cystinosis Advocate newsletter will also be available shortly and will included research updates and a full wrap up of the 2009 Family Conference.

Christy Arndt Greeley
Cause Admin

Campaign closed

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