Zoey is 3 we will have a life time of dealing with Prader-Willi syndrome and things that will go with it ... The Texas Prader-Willi Association was created by Texas families in order to enhance the quality of lives for all affected by Prader-Willi Syndrome (PWS). We are always available to all for support, education, and advocacy.
In January 2013, the Texas Prader-Willi Association 'Legislative Team' was able to obtain inclusion during the Texas State Senate Session which only occurs once every two years. A proposal was presented to the floor by Texas state Senator Jane Nelson to research our subset population of Prader-Willi individuals in Texas. In May of 2013, we receive word that language was accepted and voted in under Senate Bill 7. Research by the State of Texas is currently underway to see how the care and needs of all living with PWS can better be served. With PWS being such a complex and unique disability, we know there is a lack of support across Texas. This issue remains worldwide. We need to stand together and remain strong!
This year is proving to be a very successful year enhancing the quality of all lives affected by Prader-Willi Syndrome by the Texas Prader-Willi Association. We are better together, so please, Team up with us to help us reach our goals for our PWS community! Together we can do great things!!!