Documentary to star families of Eosinophilic Disorders to Raise Money for a Cure1

I am in the begining stages of puting together a team of people who can help shoot, finance, promote, and participate in a documentary about Eosinopic Diseases and the problems we face everyday as caregivers, the lack of treatment options, the lack of Federal…Read More

CLINICAL TRIALS FOR EE BOYS

Finally a clincal trial for boys with EE..no medication treatment just a testing of the effectiveness of the inhaled steriod flovent which my son uses for asthma...EE kids swallow it to allow them to eat.. I wonder is he too young for clinical trials..Stay…Read More

THANK YOU WHO VOTED FOR APFED WE RAISED $20,000!! IN CHASE COMMUNITY GIVING

THANK YOU EVERYONE WHO VOTED AND SUPPORTED MY SON MARSELLES AND OTHER EOS KIDS IN THEIR FIGHT FOR A CURE AND RAISING MONEY... would like to thank all of you who took the time to vote in Chase Community Giving, and encourage friends and family to do so. APFED,…Read More

All about Marselles in honor of National Eosinophilic Awareness week!

My son's name is Marselles he is four and he is one of the kids with EE. He never had a BIRTHDAY CAKE, NEVER HAD ICE CREAM, NEVER HAD PIZZA, NEVER HAD ANY FOOD..My son has ONE SAFE FOOD APPLES... and because of his swallowing issues he can only have…Read More

The life of an EOS Child Video Series

Marselles's allergist has ok him to be introduced Rice which is LOW but not negative on his allergy test I have recorded videos of me using the protocols taught to me by his feeding therapist at Kennedy Krieger Institute in Baltimore.... Very Graphic Video so…Read More

Fundraising time for our EOS KIDS...

The club iwomen at my school is going to be organizing a fundraiser for APFED and for the parents who may need monetary help with formula, and supplies please inbox me with any other ideas that we can do in order to include that may help our children..It will…Read More

MANDY PHOTOGRAPHY HAS TEAMED UP TO RAISE MONEY FOR APFED

Shanika Boyd just posted a link to your cause, Help Find a CURE! Save KIDS suffering from Eosinophilic Esophagitis! (http://apps.facebook.com/causes/359676?m=70a5aa83): S Book a session www.Mandydphotography.com And ½ of all money goes to…Read More
See more
to comment