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Join our fan page

we will be closing our causes page over the coming months. Please join our fan page to keep up with all the latest news from The FSHD Global Research Foundation. Join here

12 Days til Christmas

Hi everyone. Thank you so much for getting on board and spreading the word about FSHD. It is a potentially devastating disease and the more people know about it, the more likely we are to get some government funding for more research. There are 12 days til…Read More

Australia's Biggest Book Group

Do you want to support FSHD? You can do it the easy way. Join Buy one, two or more books and you've done your bit. Plus you get a good read as well. Better still buy you christmas presents here. It's so easy

I have 2 jobs for you!

Hi Gang, Hope you are all well. Job number 1 We have less than one month to reach our target of 1000 by Christmas. Can you all try and get one more person o join...surely not that hard. Job number 2 Join Australia's Biggest Book Group. It's so easy to raise…Read More

Australia's Biggest Book Group

Australia's Biggest Book Group is back, bigger and better than ever. Raising vital funds for FSHD research has never been so easy. All you to do is join our online book group and buy a book. We have 7 different books each month and fantastic discussions with…Read More

New research project in Italy for FSHD

The FSHD Global Research Foundation is funding a new research project in Italy. This is one step closer along the long road to a cure or treatment for FSH muscular Dystrophy (yay!) Help spread the word. We need everyone to recruit 2 more friends (not hard) to…Read More

Aim for the Stars 1000 by Christmas

Well guys we have got to 230 mambers in a month. Not too bad for a cause hardly anyone has heard of! Thank you to the Mandies for their massive recruitment efforts Now our aim is for 1000 by Christmas, so if everyone can recruit 3 more people we'll get there…Read More
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