Please join the Global Genes Project Awareness Campaign in support of all rare diseases!

Think about the impact that the pink ribbon campaign has made for breast cancer - imagine what we could accomplish if we could garner that support and attention for the over 300 million people world wide with rare disease! Please join the new facebook page,…Read More

Ella's Question for Mrs. Obama - CNN i-Report

Nicole Boice just posted a link to your cause, The Children's Rare Disease Network ( Please pass this on - adorable. It refers to her hope that Michelle Obama would…Read More

Rocking Concert to Make A Difference - Black Francis, “Weird Al,” Flea to Rock “Winston Calling” Benefit

The Pixies might have just kicked off the American leg of their Doolittle tour last night in Los Angeles, but Black Francis has already made plans to return to L.A. on December 8th and 9th when he headlines Winston Calling: A Rock and Comedy benefit concert…Read More

The Project Charity - The Children's Rare Disease Network is in America's Giving Challenge—Let's win $50,000!

Hi everyone, Our cause just entered in America's Giving Challenge, which gives us a chance to win $50,000! Please donate today: To win, between now and November 7th we have to get the…Read More

Rock Stars of Science and Children's Rare Disease Network Geoffrey Beene Gives Back®’s hip new campaign, “Rock Stars of Science” (a.k.a Rock S.O.S) is making its mark. Geoffrey Beene Gives Back® teamed up with GQ Magazine to create a philanthropic campaign pairing A-list rock…Read More

Enjoy a Good Laugh - another funny story!

Another classic from laugh out loud author Kelly Seymour - just another day in the life. . .

It's okay to laugh!

Want a good laugh, join us to hear a unique take on what most would think isn't so funny. From our own aspiring author Kelly, a M.O.M. on a mission and mother of Derek 11, with Joubert…Read More
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