Kristin Klein
Kristin Klein

I am a breast cancer survivor. I had the BRCA Genetic Test done 5 years ago, as my mother, sister, aunt and 1st cousin all had breast cancer. Luckily my insurance covered the entire test which was $4,000 as I was high risk. I came back BRCA Negative, and 1 year later, got breast cancer anyway, go figure. My mom and my cousin were both tested as well and both were BRACA Negative. I did find out later on, after my treatments, that they have only tested for 2 genes, I could possibly have...

I am a breast cancer survivor. I had the BRCA Genetic Test done 5 years ago, as my mother, sister, aunt and 1st cousin all had breast cancer. Luckily my insurance covered the entire test which was $4,000 as I was high risk. I came back BRCA Negative, and 1 year later, got breast cancer anyway, go figure. My mom and my cousin were both tested as well and both were BRACA Negative. I did find out later on, after my treatments, that they have only tested for 2 genes, I could possibly have another that they haven't tested for yet. If it came down to it, and I did get breast cancer again, I think I would opt for a double mastectomy, even though I was BRCA Negative. If I do have that gene that they haven't tested for,I would rather reduce by risk of getting cancer again. I think that they need to find a way to either make this test more affordable, or that all insurance plans cover it? If you happen to be tested and have the BRCA gene, it would allow you to make your decision.

Stephanie Brehm Shipman
Stephanie Brehm Shipman
  • Kristin Klein

Good info! Sorry you had to go through breast cancer!

Tracie Lloyd
Tracie Lloyd

I was tested when I was 19 because of family history. I carry the gene and had the double mastectomy when I was 39. Unfortunately I didn't have millions in the bank and my operation went wrong. I've undergone 5 years of reconstruction unlike angalinas's 3 months. I ended up having fat transfers from my legs and stomach instead of having implants so they look very natural now but I still have to go back and have small implants put in so I have a better shape. You have to understand that this...

I was tested when I was 19 because of family history. I carry the gene and had the double mastectomy when I was 39. Unfortunately I didn't have millions in the bank and my operation went wrong. I've undergone 5 years of reconstruction unlike angalinas's 3 months. I ended up having fat transfers from my legs and stomach instead of having implants so they look very natural now but I still have to go back and have small implants put in so I have a better shape. You have to understand that this is a surgery to save your life not a way of getting a free boob job on the NHS

Shawna Torchia
Shawna Torchia
  • Tracie Lloyd

OMG! So sorry to hear it! Hope your better now

Shawna Torchia
Shawna Torchia
  • Tracie Lloyd

That's way too much, but at least you have the rest of your life to pay for it!

Zoe Bremer
Zoe Bremer

It's a good idea if it can help people to avoid problems in the future but would be much better if all children (both sexes) were screened at birth with a view to removing the gene from the population in the long run.

Carmen Goulbourne
Carmen Goulbourne
  • Zoe Bremer

how would you do that ? put babies to sleep for having the gene ? they re not puppies !!!

Zoe Bremer
Zoe Bremer
  • Zoe Bremer

No,all you need to do is to practise selective breeding. You don't put down puppies for having defective genes, you just ensure that they are removed from the breeding pool. This is known as purification selection. Queen Victoria demonstrated over 100 years ago how to rid her family of haemophilia. The last person in the royal family to have haemophilia died nearly in the Russian Revoltion, although it did take until the 1960s to rid the same family of porphyria.

Monica Driscoll
Monica Driscoll

If there was a strong history of it in my family and wasn't so costly, I might consider it. I'd be more interested if more was revealed publicly about the link to breast cancer and the use of birth control pills and abortions.

Janice Valverde
Janice Valverde
  • Monica Driscoll

what on Earth could abortion have to do with breast cancer risk? that is illogical and makes no sense if you know anything about science. just wondering where you got this "information"

Monica Driscoll
Monica Driscoll
  • Monica Driscoll

That's what the abortion industry wants us to believe. The information came from readings of several doctors.

Sheryl Rutherford
Sheryl Rutherford

My mum and her 3 sisters all died of ovarian or breast cancer plus others from the previous generation. I have a mammogram done yearly but have always feared ovarian cancer, the silent killer. A cousin has recently been confirmed that she has the BRCA gene but as she has already had breast cancer/mastectomy, now has to consider the removal of her ovaries. The information I have on the gene, it can be passed to one in every two children you have. I am desperate to have the test but the cost...

My mum and her 3 sisters all died of ovarian or breast cancer plus others from the previous generation. I have a mammogram done yearly but have always feared ovarian cancer, the silent killer. A cousin has recently been confirmed that she has the BRCA gene but as she has already had breast cancer/mastectomy, now has to consider the removal of her ovaries. The information I have on the gene, it can be passed to one in every two children you have. I am desperate to have the test but the cost is beyond me. Both my daughters are anxious for answers also because if I have the gene then at least one of them probably does also. I would consider having ovaries removed as this cancer is far too difficult to diagnose. My doctor refused to give me a blood test for ovarian cancer unless I had symptoms or reason to believe I actually had the disease even knowing my family history.

Martha Garcia
Martha Garcia
  • Sheryl Rutherford

Yes I got the BRCA gene,for second time breast cancer.Now i need my ovaries removed next.my sister died ofc

Tracey Raeina
Tracey Raeina

Y is it that only older women are offered breast screening or mamogramms,cancer doesnt care about your age.. !!!! If u find somewhere private to get a screen done its a arm and a leg to pay for , i think all women from age 20 and up shud b offered this on medicare!! i had 2 freinds who lost there life to breast cancer at 26 and 25 both leave behind 2 children each and a greiving husband! :(

Angie Wood
Angie Wood
  • Tracey Raeina

If you find something like Ellis Fischel, or another Woman's Cancer Research Hospital, I believe they will do free screenings annually if you can't afford it.

Angie Wood
Angie Wood
  • Tracey Raeina

Mammograms that is, not this new DNA test

Melinda Hazeltine
Melinda Hazeltine

My daughter was tested 10 years ago and tested positive for the BRCA gene with an 80% chance of breast cancer & ovarian cancer. She chose to have the double mastectomy, she was 24 yrs. old at the time. The doctors would not test me, but I would like to know if I am also a candidate for the gene.

Jennifer Bagley
Jennifer Bagley
  • Melinda Hazeltine

Melinda, you should most definitely have the tes done. Mine was negative but had a double mastectomy for stage 3. I had already decided years ago that was my path should i ever get diagnosed. I wanted to know for my children and my mother

Michelle Himmelein Holloway
Michelle Himmelein Holloway
  • Melinda Hazeltine

Melinda, my mother passed from ovarian cancer 10 years ago, last year my doc asked if I wanted to take the test I said yes, I called my sister and told her about she also got tested, we are both BRACA 1 positive, since then we have both had complete hysterectomies, I am only 34 and my sister is 37. we both have children so that is not a problem, the doc telling me that my daughter and 3 sons should also get tested scares me to death. I wish you the best of luck

Lee Bingham
Lee Bingham

The problem is it costs around $3000 (or more) and I'm sure insurance won't cover it. I have a very high chance of getting breast cancer and my daughter even higher, because both of her grandmothers had breast cancer.

Anne Thompson Baker
Anne Thompson Baker
  • Lee Bingham

people with a high risk, like you Lee, should be covered by insurance to get the test! maybe someday soon we can all be covered!

Ada Harper
Ada Harper

The BRCA1gene test should be covered by insurance just as mammograms (yearly). The BRCA1 is a much needed diagnostic tool also; especially on women who are at risk!

Debbie Andarakis
Debbie Andarakis

In Australia, you first have to have a family member currently with breast cancer in order to be tested. As both of my sisters have already passed away, I am unable to be tested until someone else in my family gets breast cancer and agrees to be tested while they are still living. There is a very high chance I have the BRCA 1 or BRCA 2 gene, but under our health system I'm out of luck as far as preventative mastectomy is concerned. My kids have a real fear that something will happen to me as...

In Australia, you first have to have a family member currently with breast cancer in order to be tested. As both of my sisters have already passed away, I am unable to be tested until someone else in my family gets breast cancer and agrees to be tested while they are still living. There is a very high chance I have the BRCA 1 or BRCA 2 gene, but under our health system I'm out of luck as far as preventative mastectomy is concerned. My kids have a real fear that something will happen to me as they have already lost their father to MND and several family members to cancer. I think my children should know whether I carry the gene or not so that they are aware of their medical history and can prepare their own children for what they should watch for.

Pamela Odom
Pamela Odom
  • Debbie Andarakis

That is a shame. Shame on any society that is not making sure the health of us all is not a priority. SHAME SHAME SHAME. Women we have to step up to help other women get the help they need this is ridiculous.

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