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Rex Scates
Rex Scates

As a person with a Oliodendroglioma we are the silent majority of people with a brain tumor. We have a good survival percentage but with current technology a zero percent "cure" rate. I will have it the rest of my life. My goal is to die of old age. Plus basically no research fir treatments is used for our brain tumor type yet more of us are alive than people with a GBM. Our LTD time is to long to develop a good medicine data wise. heck one that was tried on a GBM may be successful on Oilios but they never tried.

Donna Amati
Donna Amati
  • Rex Scates

Thank you for your signature, and helping raise our voice for awareness.

Donna Amati
Donna Amati
  • Rex Scates

I have an Oligodrenglomia gr.2 also, you're right about our tumor type :-( that's why I started this. Hopefully it will make a difference for others :-) God Bless

Rex Scates
Rex Scates
  • Rex Scates

your on virtualtrials.com also correct? Al Musella is the best supporter of brain tumor research anywhere.

Donna Amati
Donna Amati
  • Rex Scates

No, but I will be...LOL..thanks!

T. Frank Box
T. Frank Box
  • Rex Scates

me too I survived the same thing 2 surgeries 30 radiation treatments & 1 year Procarbazine PCV
2 1/2 Years Speech therapy.

Anthony Armentani
Anthony Armentani

My Sister, Mom, Aunt and myself all had/have Meningiomas! More than our fair share in this family... Thanks for helping to bring Awareness. K

Donna Amati
Donna Amati
  • Anthony Armentani

Thank you for your signature, and helping raise our voice for awareness.

James Hartt
James Hartt
  • Anthony Armentani

Bring Awareness to this Highly Successful Cancer treatment, No Radiation/Chemo: http://www.youtube.com/watch?v=ARp_JlXqDsU and look on Left/Right sides for Survivors and info here http://burzynskipatientgroup.org/

Debbie Sexton
Debbie Sexton
  • Anthony Armentani

Karen i have just been recently diagnoised with a small 7mm Meningioma. This is all new to me. I have MS and while I was having an MRI for my MS they found this tumor. They are going to leave it alone at the moment and watch it to see if it grows. I am really nervous just knowing something is in my brain that should not be there. I see where you and a lot of your family members also have Meningionas. Did the tumors have to be removed in all of you. Guess just scared and wanted to hear...

Karen i have just been recently diagnoised with a small 7mm Meningioma. This is all new to me. I have MS and while I was having an MRI for my MS they found this tumor. They are going to leave it alone at the moment and watch it to see if it grows. I am really nervous just knowing something is in my brain that should not be there. I see where you and a lot of your family members also have Meningionas. Did the tumors have to be removed in all of you. Guess just scared and wanted to hear something from someone that has had experiece with the tumors. Any help would be appreciated. Thank you!

Anthony Armentani
Anthony Armentani
  • Anthony Armentani

Hi Debbie: Sorry to hear about your diagnosis. Everyone is different depends on location, size and if you are having any cognitive problems. My Mom's was discovered when she was diagnosed w/end stage ovarian cancer, we did nothing about hers. My Aunt was 90 yo with other health problems, and didnt have any symptoms, just watched hers. My Sister was having seizures and her MNG was huge, plus she had few other smaller MNGs, she has had 4 surgeries and gamma knife radiation to keep her's in...

Hi Debbie: Sorry to hear about your diagnosis. Everyone is different depends on location, size and if you are having any cognitive problems. My Mom's was discovered when she was diagnosed w/end stage ovarian cancer, we did nothing about hers. My Aunt was 90 yo with other health problems, and didnt have any symptoms, just watched hers. My Sister was having seizures and her MNG was huge, plus she had few other smaller MNGs, she has had 4 surgeries and gamma knife radiation to keep her's in check. I was having cognitive problems which eventually led to discovery of my MNG, I've had 2 surgeries. We discovered a new MNG a few yrs ago and are just watching it for now, I may opt for a lil radiation to kill it before it can grow any larger. Please get yourself to a Experienced Brain Tumor Center to keep monitoring it. MNG's generally are slow-growing tumors. There are tons of MNG Warriors out here, check out Meningioma Mommas, Brain Tumor Survivors & Brain Tumor Talk facebook pages so you can connect with so many of us. Also go to www.braintumor.org to get facts about your specific type of tumor. Lots of good info out there, and lots of good people willing to share. Best of Luck to You, K

Tina Porciello Miller
Tina Porciello Miller

My mom died from brain cancer

Donna Amati
Donna Amati
  • Tina Porciello Miller

Thank you for your signature, and helping raise our voice for awareness.

James Hartt
James Hartt
  • Tina Porciello Miller

Bring Awareness to this Highly Successful Cancer treatment, No Radiation/Chemo: http://www.youtube.com/watch?v=ARp_JlXqDsU and look on Left/Right sides for Survivors and info here http://burzynskipatientgroup.org/

Donna Amati
Donna Amati
  • Tina Porciello Miller

Sorry to hear this, you're making a difference for her!

Gloria Mediavilla
Gloria Mediavilla

Helping raise awareness !

Donna Amati
Donna Amati
  • Gloria Mediavilla

Thank you !

Esther Mariño-Palermo

I am a BT Survivor 30 Yrs....Partial Removal...Can never give up HOPE!

Donna Amati
Donna Amati
  • Esther Mariño-Palermo

Thank you for signing!

Carol Vittoria
Carol Vittoria

I AM A MENINGIOMA SURVIVOR AND A "LUCKY LADY"! IN 2006 I HAD A LEFT, FRONTAL CRANIOTOMY, HAD THE TUMOR SUCCESSFULLY REMOVED, HAVE NO DEFICITS AND AM FULLY RECOVERED. HOWEVER, MANY SURVIVORS ARE NOT THIS FORTUNATE. MANY LIVE WITH HORRIFIC DISABILITIES AND EVENTUALLY DIE. THESE TUMORS ARE CLASSIFIED BENIGH BECAUSE THEY DON'T SPREAD FROM ORGAN TO ORGAN BUT IN SOME CASES THEY MULTIPLY! BECAUSE OF THIS CLASSIFICATION, THERE IS VERY LITTLE FUNDING FOR RESEARCH TO FIND A CURE FOR THESE DESTRUCTIVE...

I AM A MENINGIOMA SURVIVOR AND A "LUCKY LADY"! IN 2006 I HAD A LEFT, FRONTAL CRANIOTOMY, HAD THE TUMOR SUCCESSFULLY REMOVED, HAVE NO DEFICITS AND AM FULLY RECOVERED. HOWEVER, MANY SURVIVORS ARE NOT THIS FORTUNATE. MANY LIVE WITH HORRIFIC DISABILITIES AND EVENTUALLY DIE. THESE TUMORS ARE CLASSIFIED BENIGH BECAUSE THEY DON'T SPREAD FROM ORGAN TO ORGAN BUT IN SOME CASES THEY MULTIPLY! BECAUSE OF THIS CLASSIFICATION, THERE IS VERY LITTLE FUNDING FOR RESEARCH TO FIND A CURE FOR THESE DESTRUCTIVE TUMORS. RAISING AWARENESS AND FUND RAISING FOR THE PAST SEVEN YEARS IS MY WAY OF" PAYING IT FORWARD" FOR MY COMPLETE RECOVERY!

Donna Amati
Donna Amati
  • Carol Vittoria

Thank you for your signature, and helping raise our voice for awareness.

Melissa Dotson
Melissa Dotson

Meningioma Momma

Donna Amati
Donna Amati
  • Melissa Dotson

Thank you for your signature, and helping raise our voice for awareness.

Kevin Brown
Kevin Brown

same here , hits very close to my heart................... Please sign.

Donna Amati
Donna Amati
  • Kevin Brown

Thank you for your signature, and helping raise our voice for awareness.

Mona Norton Adams
Mona Norton Adams

This hits very close to my heart.......please sign.

Donna Amati
Donna Amati
  • Mona Norton Adams

Thank you for your signature, and helping raise our voice for awareness.

Molly McMurphy
Molly McMurphy

I used to have such beautiful hair. Small, compared to watching everybody in my support group die around me I know. But my hair is only the most recent thing this disease has taken from me. Precious memories, the ability to multi-task, the sense of security when I look at my little boy. So much of who I thought I was is gone and The constant threat of death every three months (MRI.) How can I expect to beat something nobody ever does? Please, please fund more research. It is a silent and deadly killer.

May Moloney
May Moloney
  • Molly McMurphy

Donna Amati
Donna Amati
  • Molly McMurphy

Molly, it's very hard ! I understand I have 3 children also, the turmoil and guilt we carry and worry about our future Is overwhelming . <3 Thank you for your signature, and helping raise our voice for awareness. God Bless You!!!

Ana Esner Musafir
Ana Esner Musafir
  • Molly McMurphy

go on molly ! God will protect you!

Donna Amati
Donna Amati
  • Molly McMurphy

We still have feelings, we are human. Yes, we have had many fallen warriors, but you still have feelings you're human. Fears, sadness, feeling of loss and the list can go on and on. Our lives have been changed drastically and they will never go back to they way they were, and that's hard to deal with.

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