The page was started (and the picture above) is in honor of my daughter Kaylin Danielle. I love you Toots! I have been writing letters for the last few weeks to Gov. Cuomo in NY to proclaim Feb. 7-14th CHD week. My step Mom started the petition to help us get this done!
Is this petition JUST for the state of NY, I think i would be AWESOME if it went all across the country... every state adopt Feb 7-14 as CHD awareness week!! How CAN we help make that happen?
contact your governor and tell them what needs to be done
Angela Groninger you can petition your state by going to your proclamation department. This one is specifically for NY. I googled NY state proclamation department and then it gave me an email address as well as a physical address. I have been emailing and sending letters since nov. 30th. There is a website on fb... let me get the link>>>> https://www.facebook.com/?ref=tn_tnmn#!/CHDAware?fref=ts these people may be able to help you... its the official page for the chd awareness week across the nation! :)
I actually just sent in the proclamation tonight!! I think I am too late though, it had to be sent in 6-8 weeks before the signed proclamation was needed! and it's 4 weeks from today for feb 7-14 awareness week... but i will keep my fingers crossed anyway!!
you never know!!! great job, and even if youre too late for this year, you can always try for next year... you can also try it on a more local level and contact your city's mayor about the proclamation! :) Im doing that today as well ;)
I signed. I live in Pa and both my Mom-Mom and Pop-Pop on my mom's side died from Congenital heart disease i wish we could make this a national thing!
we can.... there is a petition going around for a NATIONAL heart week. I will see if I can find you teh link Megan!
I just sent out my email's to 50 friends to help with your petition! Doing this in honor of my HLHS Angel, ISABELLE GRACE ♥ I hope you get all the signatures you need!
Petition to help spread awareness about CHD! I've committed to getting 5 friends to sign this petition. Your voice will make a difference. PLEASE consider signing the petition. Thank You!!
?? I am sorry, I don't quite understand your message above?? :-) thanks for adding my angel though (to what I am unclear...sorry...)
Angela, she added her picture to the petition up above. If you look under Kaylins picture you will see thumbnails of other children who are currently fighting CHD's or who are CHD Angels. Donna is my step mom and she added Isabella's picture, if you dont want her to you can just tell her not to, and she will take her off :)
Hugs to Kaylin in heaven! <3
thank you so much!
I have shared this to friends on FB and then they shared it on their own page and I posted the link on other HEART groups that I have joined! I hope it helps! <3
I pray you get enough to sign this so that Kaylin gets her chance to make the difference.
thank you Fif! She was my world, and its been difficult without her, but I do not want this to ever happen to another family, we need this awareness!!
Thank you Krystal and Krystals step mom for setting up this petition <3.
your very welcome
My little guy who is 11 has Hypo Plastic Left Heart Syndrome so far we have been through 4 open hearts, several heat caths and 1 stork.
Not enough is being done for this cause. In July of this past year they found that I had a CHD.. I am 43 years old. I had open heart surgery in August and seem to be ok now but it took 43 years to detect. I was fortunate others are not.. Please support this cause.. Sorry for anymore loss from CHD...
That was supposed to say "open" heart surgeries... Auto correct!:-(
My angel Anthony blessed my life from 8-17-2000 until 10-18-2000. He never made it home. He had 2 own heart surgeries in that short time. The whole thing was so shocking and unexpected. 12 years later and it still hurts:-( If you need someone to talk to who has been thru it, please feel free to contact me(((hugs))).