Krystal Peters
Krystal Peters

The page was started (and the picture above) is in honor of my daughter Kaylin Danielle. I love you Toots! I have been writing letters for the last few weeks to Gov. Cuomo in NY to proclaim Feb. 7-14th CHD week. My step Mom started the petition to help us get this done!

Angela Groninger
Angela Groninger
  • Krystal Peters

Is this petition JUST for the state of NY, I think i would be AWESOME if it went all across the country... every state adopt Feb 7-14 as CHD awareness week!! How CAN we help make that happen?

Donna Marie
Donna Marie
  • Krystal Peters

contact your governor and tell them what needs to be done

Krystal Peters
Krystal Peters
  • Krystal Peters

Angela Groninger you can petition your state by going to your proclamation department. This one is specifically for NY. I googled NY state proclamation department and then it gave me an email address as well as a physical address. I have been emailing and sending letters since nov. 30th. There is a website on fb... let me get the link>>>> https://www.facebook.com/?ref=tn_tnmn#!/CHDAware?fref=ts these people may be able to help you... its the official page for the chd awareness week across the nation! :)

Angela Groninger
Angela Groninger
  • Krystal Peters

I actually just sent in the proclamation tonight!! I think I am too late though, it had to be sent in 6-8 weeks before the signed proclamation was needed! and it's 4 weeks from today for feb 7-14 awareness week... but i will keep my fingers crossed anyway!!

Krystal Peters
Krystal Peters
  • Krystal Peters

you never know!!! great job, and even if youre too late for this year, you can always try for next year... you can also try it on a more local level and contact your city's mayor about the proclamation! :) Im doing that today as well ;)

Megan Dillow
Megan Dillow
  • Krystal Peters

I signed. I live in Pa and both my Mom-Mom and Pop-Pop on my mom's side died from Congenital heart disease i wish we could make this a national thing!

Krystal Peters
Krystal Peters
  • Krystal Peters

we can.... there is a petition going around for a NATIONAL heart week. I will see if I can find you teh link Megan!

Darlene Glover
Darlene Glover

in honor of my Grandson Dusty Glover who was born with chd. Love you Dusty.

Darlene Glover
Darlene Glover
  • Darlene Glover

This is not Dusty of course. Just trying to get signatures on the petition. CHD, What a great Organization!

Krystal Peters
Krystal Peters
  • Darlene Glover

Darlene Glover if you want to send me a picture of Dusty to kaylinsheart@yahoo.com I will GLADLY add him to the photo gallery!

Mandy Relf
Mandy Relf

signed in awe of a little boy daniel who just melts my heart x x

Donna Marie
Donna Marie
  • Mandy Relf

TY

Brett Lowings
Brett Lowings

signed!

Donna Marie
Donna Marie
  • Brett Lowings

Don't forget to share

Kristen Hibbler
Kristen Hibbler

I signed it but it is not showing up that I did.

Michaela Allcock
Michaela Allcock

My daughter was born with complete AVSD which wasn't diagnosed until we almost lost her two days after she was born, she also had a narrowing on the aorta and an enlarged pulmonary, thanks to Birmingham Childrens Hospital in England they removed the narrowing on the aorta at four days old, she has had 4 OHS and several catheters...she will be 15 in October and is doing well, fingers x'd , she is my star and the hospitals biggest success story, I am signing this in support of all heart parents everywhere.xxx good luck to you all

Donna Marie
Donna Marie

If you have a heart child you would like to add please leave a message for us on here. This is so improtant as there is just not enough aweareness of CHD! please let other people know they are not alone.

Kerstin Brewster
Kerstin Brewster

Signed in honor of my daughter kiara living and fighting CHD every day of her life and in honor of all the CHD warriors who have lost the fight and who are still fighting-too many children whom too many people don't know about!

Claire Louise Diss
Claire Louise Diss

I have sent emails, posted it facebook, some people just not interested. Breaks my heart x

Billie Tassone Werts
Billie Tassone Werts

These poor babies !!!!!

See more comments…