The page was started (and the picture above) is in honor of my daughter Kaylin Danielle. I love you Toots! I have been writing letters for the last few weeks to Gov. Cuomo in NY to proclaim Feb. 7-14th CHD week. My step Mom started the petition to help us get this done!
Is this petition JUST for the state of NY, I think i would be AWESOME if it went all across the country... every state adopt Feb 7-14 as CHD awareness week!! How CAN we help make that happen?
contact your governor and tell them what needs to be done
Angela Groninger you can petition your state by going to your proclamation department. This one is specifically for NY. I googled NY state proclamation department and then it gave me an email address as well as a physical address. I have been emailing and sending letters since nov. 30th. There is a website on fb... let me get the link>>>> https://www.facebook.com/?ref=tn_tnmn#!/CHDAware?fref=ts these people may be able to help you... its the official page for the chd awareness week across the nation! :)
I actually just sent in the proclamation tonight!! I think I am too late though, it had to be sent in 6-8 weeks before the signed proclamation was needed! and it's 4 weeks from today for feb 7-14 awareness week... but i will keep my fingers crossed anyway!!
you never know!!! great job, and even if youre too late for this year, you can always try for next year... you can also try it on a more local level and contact your city's mayor about the proclamation! :) Im doing that today as well ;)
I signed. I live in Pa and both my Mom-Mom and Pop-Pop on my mom's side died from Congenital heart disease i wish we could make this a national thing!
we can.... there is a petition going around for a NATIONAL heart week. I will see if I can find you teh link Megan!
in honor of my Grandson Dusty Glover who was born with chd. Love you Dusty.
This is not Dusty of course. Just trying to get signatures on the petition. CHD, What a great Organization!
Darlene Glover if you want to send me a picture of Dusty to firstname.lastname@example.org I will GLADLY add him to the photo gallery!
signed in awe of a little boy daniel who just melts my heart x x
Don't forget to share
I signed it but it is not showing up that I did.
My daughter was born with complete AVSD which wasn't diagnosed until we almost lost her two days after she was born, she also had a narrowing on the aorta and an enlarged pulmonary, thanks to Birmingham Childrens Hospital in England they removed the narrowing on the aorta at four days old, she has had 4 OHS and several catheters...she will be 15 in October and is doing well, fingers x'd , she is my star and the hospitals biggest success story, I am signing this in support of all heart parents everywhere.xxx good luck to you all
If you have a heart child you would like to add please leave a message for us on here. This is so improtant as there is just not enough aweareness of CHD! please let other people know they are not alone.
Signed in honor of my daughter kiara living and fighting CHD every day of her life and in honor of all the CHD warriors who have lost the fight and who are still fighting-too many children whom too many people don't know about!
I have sent emails, posted it facebook, some people just not interested. Breaks my heart x
These poor babies !!!!!