The page was started (and the picture above) is in honor of my daughter Kaylin Danielle. I love you Toots! I have been writing letters for the last few weeks to Gov. Cuomo in NY to proclaim Feb. 7-14th CHD week. My step Mom started the petition to help us get this done!
Is this petition JUST for the state of NY, I think i would be AWESOME if it went all across the country... every state adopt Feb 7-14 as CHD awareness week!! How CAN we help make that happen?
contact your governor and tell them what needs to be done
Angela Groninger you can petition your state by going to your proclamation department. This one is specifically for NY. I googled NY state proclamation department and then it gave me an email address as well as a physical address. I have been emailing and sending letters since nov. 30th. There is a website on fb... let me get the link>>>> https://www.facebook.com/?ref=tn_tnmn#!/CHDAware?fref=ts these people may be able to help you... its the official page for the chd awareness week across the nation! :)
I actually just sent in the proclamation tonight!! I think I am too late though, it had to be sent in 6-8 weeks before the signed proclamation was needed! and it's 4 weeks from today for feb 7-14 awareness week... but i will keep my fingers crossed anyway!!
you never know!!! great job, and even if youre too late for this year, you can always try for next year... you can also try it on a more local level and contact your city's mayor about the proclamation! :) Im doing that today as well ;)
I signed. I live in Pa and both my Mom-Mom and Pop-Pop on my mom's side died from Congenital heart disease i wish we could make this a national thing!
we can.... there is a petition going around for a NATIONAL heart week. I will see if I can find you teh link Megan!
So sorry for your loss Krystal... :( What address would I use to write to the governor?
I have signed this page because my son under went a major operation on his heart, but for the fantastic work done by the top leading heart surgeon, my son would not be here today,
I signed it but it is not showing up that I did.
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My little guy who is 11 has Hypo Plastic Left Heart Syndrome so far we have been through 4 open hearts, several heat caths and 1 stork.
Not enough is being done for this cause. In July of this past year they found that I had a CHD.. I am 43 years old. I had open heart surgery in August and seem to be ok now but it took 43 years to detect. I was fortunate others are not.. Please support this cause.. Sorry for anymore loss from CHD...
That was supposed to say "open" heart surgeries... Auto correct!:-(
My angel Anthony blessed my life from 8-17-2000 until 10-18-2000. He never made it home. He had 2 own heart surgeries in that short time. The whole thing was so shocking and unexpected. 12 years later and it still hurts:-( If you need someone to talk to who has been thru it, please feel free to contact me(((hugs))).