The page was started (and the picture above) is in honor of my daughter Kaylin Danielle. I love you Toots! I have been writing letters for the last few weeks to Gov. Cuomo in NY to proclaim Feb. 7-14th CHD week. My step Mom started the petition to help us get this done!
Is this petition JUST for the state of NY, I think i would be AWESOME if it went all across the country... every state adopt Feb 7-14 as CHD awareness week!! How CAN we help make that happen?
contact your governor and tell them what needs to be done
Angela Groninger you can petition your state by going to your proclamation department. This one is specifically for NY. I googled NY state proclamation department and then it gave me an email address as well as a physical address. I have been emailing and sending letters since nov. 30th. There is a website on fb... let me get the link>>>> https://www.facebook.com/?ref=tn_tnmn#!/CHDAware?fref=ts these people may be able to help you... its the official page for the chd awareness week across the nation! :)
I actually just sent in the proclamation tonight!! I think I am too late though, it had to be sent in 6-8 weeks before the signed proclamation was needed! and it's 4 weeks from today for feb 7-14 awareness week... but i will keep my fingers crossed anyway!!
you never know!!! great job, and even if youre too late for this year, you can always try for next year... you can also try it on a more local level and contact your city's mayor about the proclamation! :) Im doing that today as well ;)
I signed. I live in Pa and both my Mom-Mom and Pop-Pop on my mom's side died from Congenital heart disease i wish we could make this a national thing!
we can.... there is a petition going around for a NATIONAL heart week. I will see if I can find you teh link Megan!
I pray you get enough to sign this so that Kaylin gets her chance to make the difference.
thank you Fif! She was my world, and its been difficult without her, but I do not want this to ever happen to another family, we need this awareness!!
Thank you Krystal and Krystals step mom for setting up this petition <3.
your very welcome
I just sent out my email's to 50 friends to help with your petition! Doing this in honor of my HLHS Angel, ISABELLE GRACE ♥ I hope you get all the signatures you need!
Petition to help spread awareness about CHD! I've committed to getting 5 friends to sign this petition. Your voice will make a difference. PLEASE consider signing the petition. Thank You!!
?? I am sorry, I don't quite understand your message above?? :-) thanks for adding my angel though (to what I am unclear...sorry...)
Angela, she added her picture to the petition up above. If you look under Kaylins picture you will see thumbnails of other children who are currently fighting CHD's or who are CHD Angels. Donna is my step mom and she added Isabella's picture, if you dont want her to you can just tell her not to, and she will take her off :)
My daughter was born with complete AVSD which wasn't diagnosed until we almost lost her two days after she was born, she also had a narrowing on the aorta and an enlarged pulmonary, thanks to Birmingham Childrens Hospital in England they removed the narrowing on the aorta at four days old, she has had 4 OHS and several catheters...she will be 15 in October and is doing well, fingers x'd , she is my star and the hospitals biggest success story, I am signing this in support of all heart parents everywhere.xxx good luck to you all
If you have a heart child you would like to add please leave a message for us on here. This is so improtant as there is just not enough aweareness of CHD! please let other people know they are not alone.
Signed in honor of my daughter kiara living and fighting CHD every day of her life and in honor of all the CHD warriors who have lost the fight and who are still fighting-too many children whom too many people don't know about!
I have sent emails, posted it facebook, some people just not interested. Breaks my heart x
These poor babies !!!!!
Thank you to everyone who comes to this page and signs/shares. It means the world to me. I know Kaylin would appreciate it as well as all the other heart angels, and heart warriors. I'm so proud of Kaylin and how well she fought. She was a hero..... she is my hero.