Shannon Grant
Shannon Grant

This is the most painful debilitating disease on earth. It is like living your life in burning hell. This disease has spread through my body like wild fire! When I told my doctor that the burning pain had spread to my arms she said you see this tells us it is your anxiety because no disease does this. In Canada we need more doctors educated to recognize this dreadful disease. We need treatment available here in Canada. We need research and awareness to find a CURE! Please help us! We are suffering!

Rob Lanava
Rob Lanava
  • Shannon Grant

Shannon, I am sorry your doctor's are not educated enough to help you, but your not alone!!

Shannon Grant
Shannon Grant
  • Shannon Grant

Thank-You Rob. I appreciate the support and hope you and your family have a Wonderful Thanksgiving!

Atara Schimmel
Atara Schimmel
  • Shannon Grant

Shannon, I am so sorry that you are suffering and that you had to hear such ignorance and cruelty from the mouth of another human being.

Shannon Grant
Shannon Grant
  • Shannon Grant

Thank-You Atara, I am sorry to hear that you are suffering too.

Inger Spain Allston
Inger Spain Allston
  • Shannon Grant

My daughtet nurse told her she was faking and was trying to ger get her doctor to send her back to work.

Rebecca May
Rebecca May

I am fighting and will support this cause until the day I die.

Carmen Loneske
Carmen Loneske

This made me cry as this is my daughters life.

Base Jones
Base Jones

yes mine started left foot/and now spread whole left leg including both hips and now also in right foot and countinues to spread I like so many others suffer dayly with not to many options awearness is needed as well as research.

Kevin Scardifield
Kevin Scardifield

Worldwide Awareness Campaign Please Help.

People and sites from around the world are coming together to turn November 2013 into International RSD Awareness Month, currently only America has a National Awareness Month.
Please spare 5 1/2 mins to watch this video but be aware you may find some of the images disturbing.
http://www.youtube.com/watch?v=MviVcjWZDts
it is vital that you watch it to the end.
If you are newly diagnosed I strongly suggest you do not watch it.
If you live in the UK...

Worldwide Awareness Campaign Please Help.

People and sites from around the world are coming together to turn November 2013 into International RSD Awareness Month, currently only America has a National Awareness Month.
Please spare 5 1/2 mins to watch this video but be aware you may find some of the images disturbing.
http://www.youtube.com/watch?v=MviVcjWZDts
it is vital that you watch it to the end.
If you are newly diagnosed I strongly suggest you do not watch it.
If you live in the UK please sign http://epetitions.direct.gov.uk/petitions/31344.
E-mail the link to your MP asking why since being informed on 30/10/2010 David Cameron, Nick Clegg and The DOH have refused to do anything about the situation.
You can also send it to some members of the House of Lords.
http://www.parliament.uk/mps-lords-and-offices/lords/
No matter where you live in the world can you please sign here http://www.pledgebank.com/RSDCRPS.
http://you.38degrees.org.uk/petitions/worldwide-rsd-crps-awareness-campaign
http://www.thepetitionsite.com/460/118/995/worldwide-rsdcrps-awareness-campaign/
http://www.change.org/en-GB/petitions/goverments-worldwide-un-world-health-organisiation-find-the-millions-of-un-misdaignosed-rsd-crps-sufferers-across-the-world
http://www.ipetitions.com/petition/worldwide-rsdcrps-awareness-campaign/
http://www.gopetition.com/petitions/worldwide-rsd-crps-awareness-campaign.html
http://www.activism.com/en_GB/petition/worldwide-rsd-crps-awareness-campaign/40439
http://www.causes.com/causes/800617-worldwide-rsd-awareness-campaign/actions/1700679
http://www.petitionbuzz.com/petitions/worldwidersdcrps
http://www.petitiononline.com/RSDCRPS1/petition.html
http://www.communityrun.org/petitions/worldwide-rsd-crps-awareness-campaign-1
https://petitions.whitehouse.gov/petition/take-immediate-action-inform-medical-professionals-existence-rsdcrps-most-painful-incurable/SFkd2cS6

If you live in another Country can you start your own petition and send the link to your own Politicians.
If you are willing to commit to spending 15mins a day for 4 weeks then 15mins a week to help spread this then please e-mail me on.
RSDFighter@hotmail.co.uk or join me on facebook.
Kevin

Tammy Warnol Broselow
Tammy Warnol Broselow

Posting on my FB for RSD/CRPS AWARENESS MONTH to support others who also have this debilitating illness. I have been suffering for 17 years now and mine has spread full body over the years after starting in my left ankle and Achilles tendon. Our Wish Is For a CURE as the more we make Aware it's our hope for a CURE! Please sign and make others Aware! Thank You!

Janice Muccio
Janice Muccio

I v spent the last 2 years of my life trying to make the pain go away only to find that no matter what I do or take it is only getting worse. Society can not see my pain. Most probably do not even believe it is there. If I could have plastic surgery so my body could show my pain I would be so disfigured nobody would be able to look at me. The driver who rear ended me received a $700.00 fine for careless driving, my life will never be the same.

Lynn Schott
Lynn Schott
  • Janice Muccio

xoxoxxo

Shannon Grant
Shannon Grant
  • Janice Muccio

My heart goes out to you Janice! This is the disease from hell!

Linda Wales
Linda Wales

I have been suffering with RSD for 8 years and seven months now, I've tried all sorts of treatments with no success. Around this time of year is when I suffer the most so I know first hand how frustrating and depressing it can be. I try not to let it get the best of me but I have to admit it often does when the pain gets too severe. I pray every day for a cure and that more people can be made aware so they can get a better understanding of what we are going through. There is very little...

I have been suffering with RSD for 8 years and seven months now, I've tried all sorts of treatments with no success. Around this time of year is when I suffer the most so I know first hand how frustrating and depressing it can be. I try not to let it get the best of me but I have to admit it often does when the pain gets too severe. I pray every day for a cure and that more people can be made aware so they can get a better understanding of what we are going through. There is very little awareness of this illness which makes it even more upsetting for us, the sufferers. This is an illness most doctors don't even understand so try to imagine how we the patient feels.

Linda Wales
Linda Wales
  • Linda Wales

PLEASE HELP US RAISE AWARENESS!! ....... THANK YOU!!

Charlie Brown
Charlie Brown

Got CRPS 3 years ago after operation to my left ankle. I had never heard of the condition and did not realise the seriousness of it or the fact that it would not get better, and worse still travel to other parts of my body. It is a cruel condition that robs people of their lives. x:O(

Deanna Hall
Deanna Hall

This cause is very dear to my ❤.... My husband is in stage 3/4 type 2 body-wide. I am doing my part to spread awareness!

See more comments…