Shannon Grant
Shannon Grant

This is the most painful debilitating disease on earth. It is like living your life in burning hell. This disease has spread through my body like wild fire! When I told my doctor that the burning pain had spread to my arms she said you see this tells us it is your anxiety because no disease does this. In Canada we need more doctors educated to recognize this dreadful disease. We need treatment available here in Canada. We need research and awareness to find a CURE! Please help us! We are suffering!

Rob Lanava
Rob Lanava
  • Shannon Grant

Shannon, I am sorry your doctor's are not educated enough to help you, but your not alone!!

Shannon Grant
Shannon Grant
  • Shannon Grant

Thank-You Rob. I appreciate the support and hope you and your family have a Wonderful Thanksgiving!

Atara Schimmel
Atara Schimmel
  • Shannon Grant

Shannon, I am so sorry that you are suffering and that you had to hear such ignorance and cruelty from the mouth of another human being.

Shannon Grant
Shannon Grant
  • Shannon Grant

Thank-You Atara, I am sorry to hear that you are suffering too.

Inger Spain Allston
Inger Spain Allston
  • Shannon Grant

My daughtet nurse told her she was faking and was trying to ger get her doctor to send her back to work.

Janice Muccio
Janice Muccio

I v spent the last 2 years of my life trying to make the pain go away only to find that no matter what I do or take it is only getting worse. Society can not see my pain. Most probably do not even believe it is there. If I could have plastic surgery so my body could show my pain I would be so disfigured nobody would be able to look at me. The driver who rear ended me received a $700.00 fine for careless driving, my life will never be the same.

Lynn Schott
Lynn Schott
  • Janice Muccio

xoxoxxo

Shannon Grant
Shannon Grant
  • Janice Muccio

My heart goes out to you Janice! This is the disease from hell!

Rebecca May
Rebecca May

I am fighting and will support this cause until the day I die.

Carmen Loneske
Carmen Loneske

This made me cry as this is my daughters life.

Linda Wales
Linda Wales

I have been suffering with RSD for 8 years and seven months now, I've tried all sorts of treatments with no success. Around this time of year is when I suffer the most so I know first hand how frustrating and depressing it can be. I try not to let it get the best of me but I have to admit it often does when the pain gets too severe. I pray every day for a cure and that more people can be made aware so they can get a better understanding of what we are going through. There is very little...

I have been suffering with RSD for 8 years and seven months now, I've tried all sorts of treatments with no success. Around this time of year is when I suffer the most so I know first hand how frustrating and depressing it can be. I try not to let it get the best of me but I have to admit it often does when the pain gets too severe. I pray every day for a cure and that more people can be made aware so they can get a better understanding of what we are going through. There is very little awareness of this illness which makes it even more upsetting for us, the sufferers. This is an illness most doctors don't even understand so try to imagine how we the patient feels.

Linda Wales
Linda Wales
  • Linda Wales

PLEASE HELP US RAISE AWARENESS!! ....... THANK YOU!!

Lori Maw
Lori Maw

I am writing this because no one should have to live their lifes in this pain, I hope there will be something done to cure those who suffer and find away to keep others from experiencing this.praying for healing and relief of pain.

Vickie Kendall
Vickie Kendall

R.S.D., I WOULD LOVE TO JOIN YOUR CAUSE..RIGHT NOW I LOOK LIKE THAT SCREAMING MAN WITH HIS HANDS ON HIS FACE. STILL SITTING AT A LEVEL{8-9}..PAIN CLINIC DOES NOT KNOW WHAT TO DO..GOOD FOR YU GIRL..I AM SO SORRY ABOUT YOUR MOTHER, WE WOULD MAKE A GREAT COUPLE..LEGS, FEET, AND THE MOVING, TREMORS..I KNOW..DOES SHE HAVE COLD R.S.D. ARE HER FEET FREEZING, AND BLAZING ON FIRE AT NIGHT? I TOLD YU TO GO GET THOSE LIDODERM PATCHES. THE BIG ONES. THEY WILL ONLY COVER HALF HER FOOT..TOES FIRST, MAKE...

R.S.D., I WOULD LOVE TO JOIN YOUR CAUSE..RIGHT NOW I LOOK LIKE THAT SCREAMING MAN WITH HIS HANDS ON HIS FACE. STILL SITTING AT A LEVEL{8-9}..PAIN CLINIC DOES NOT KNOW WHAT TO DO..GOOD FOR YU GIRL..I AM SO SORRY ABOUT YOUR MOTHER, WE WOULD MAKE A GREAT COUPLE..LEGS, FEET, AND THE MOVING, TREMORS..I KNOW..DOES SHE HAVE COLD R.S.D. ARE HER FEET FREEZING, AND BLAZING ON FIRE AT NIGHT? I TOLD YU TO GO GET THOSE LIDODERM PATCHES. THE BIG ONES. THEY WILL ONLY COVER HALF HER FOOT..TOES FIRST, MAKE SURE THEY ARE COVERED, WORK THE PATCH DOWN. I ALWAYS TAPE MINE COMIN DOWN, SOMETIMES THEY COME LOOSE...GOOD LUCK GIRL...I AM HERE, NO MATTER HOW MUCH PAIN I AM IN..I AM HERE,,, VICKIE.

Atara Schimmel
Atara Schimmel

Thank you for creating this. I am sure the the awareness will help many people. I am so sorry that your mother is suffering so much. I can imagine how sad it is for you to watch her suffer. Thank God that you are able to transform some of that suffering into awareness and healing for others. I am inspired by what you have done and would like to create something similar for the condition that I suffer from. I suffer from a debilitating and chronic pain syndrome called Pudendal Neuralgia. The...

Thank you for creating this. I am sure the the awareness will help many people. I am so sorry that your mother is suffering so much. I can imagine how sad it is for you to watch her suffer. Thank God that you are able to transform some of that suffering into awareness and healing for others. I am inspired by what you have done and would like to create something similar for the condition that I suffer from. I suffer from a debilitating and chronic pain syndrome called Pudendal Neuralgia. The Pudendal Nerve is the nerve that innervates our pelvis. My Pudendal Nerve suffered a repetitive strain injury due to aerobic and aerobic kick-boxing classes that I took part in. The nerve damage has lead to excruciating pain similar to the pain that of RSD/CRPS sufferers. There are many of us and there is little awareness of our condition. I am writing to you in the hope that you will help me create a similar Pledge for Pudendal Neuralgia awareness. My e-mail is [email protected]. Thank you for doing God's work. Atara Schimmel

Base Jones
Base Jones

yes mine started left foot/and now spread whole left leg including both hips and now also in right foot and countinues to spread I like so many others suffer dayly with not to many options awearness is needed as well as research.

Kevin Scardifield
Kevin Scardifield

Worldwide Awareness Campaign Please Help.

People and sites from around the world are coming together to turn November 2013 into International RSD Awareness Month, currently only America has a National Awareness Month.
Please spare 5 1/2 mins to watch this video but be aware you may find some of the images disturbing.
http://www.youtube.com/watch?v=MviVcjWZDts
it is vital that you watch it to the end.
If you are newly diagnosed I strongly suggest you do not watch it.
If you live in the UK...

Worldwide Awareness Campaign Please Help.

People and sites from around the world are coming together to turn November 2013 into International RSD Awareness Month, currently only America has a National Awareness Month.
Please spare 5 1/2 mins to watch this video but be aware you may find some of the images disturbing.
http://www.youtube.com/watch?v=MviVcjWZDts
it is vital that you watch it to the end.
If you are newly diagnosed I strongly suggest you do not watch it.
If you live in the UK please sign http://epetitions.direct.gov.uk/petitions/31344.
E-mail the link to your MP asking why since being informed on 30/10/2010 David Cameron, Nick Clegg and The DOH have refused to do anything about the situation.
You can also send it to some members of the House of Lords.
http://www.parliament.uk/mps-lords-and-offices/lords/
No matter where you live in the world can you please sign here http://www.pledgebank.com/RSDCRPS.
http://you.38degrees.org.uk/petitions/worldwide-rsd-crps-awareness-campaign
http://www.thepetitionsite.com/460/118/995/worldwide-rsdcrps-awareness-campaign/
http://www.change.org/en-GB/petitions/goverments-worldwide-un-world-health-organisiation-find-the-millions-of-un-misdaignosed-rsd-crps-sufferers-across-the-world
http://www.ipetitions.com/petition/worldwide-rsdcrps-awareness-campaign/
http://www.gopetition.com/petitions/worldwide-rsd-crps-awareness-campaign.html
http://www.activism.com/en_GB/petition/worldwide-rsd-crps-awareness-campaign/40439
http://www.causes.com/causes/800617-worldwide-rsd-awareness-campaign/actions/1700679
http://www.petitionbuzz.com/petitions/worldwidersdcrps
http://www.petitiononline.com/RSDCRPS1/petition.html
http://www.communityrun.org/petitions/worldwide-rsd-crps-awareness-campaign-1
https://petitions.whitehouse.gov/petition/take-immediate-action-inform-medical-professionals-existence-rsdcrps-most-painful-incurable/SFkd2cS6

If you live in another Country can you start your own petition and send the link to your own Politicians.
If you are willing to commit to spending 15mins a day for 4 weeks then 15mins a week to help spread this then please e-mail me on.
[email protected] or join me on facebook.
Kevin

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