It's about time we kicked back, I have been deemed fit for work by a 'medical professional' from the ATOS team and have ESA taken away and I can't get jobseekers as I have a £400 a month occupational pension I'm expected to survive on. I also have a report from the ME specialist consultant who writes the NICE guidelines on the condition that says in black and white I should not work as it would be severely detrimental to my health. ATOS and the Prime Minister and Chris Grayling DWP...
It's about time we kicked back, I have been deemed fit for work by a 'medical professional' from the ATOS team and have ESA taken away and I can't get jobseekers as I have a £400 a month occupational pension I'm expected to survive on. I also have a report from the ME specialist consultant who writes the NICE guidelines on the condition that says in black and white I should not work as it would be severely detrimental to my health. ATOS and the Prime Minister and Chris Grayling DWP completely disregarded this. I wonder if the PM's wife had ME he would make he go out to work? NO I think not! x
That is a joke...these professionals have no idea of the real world and how any illness affects our ability to live and work without pain and stress.. They should be made to spend time with you so they see 1st hand what you suffer, not read about in a book...unfortunately Pam you need to be foreigner who has come here with no prospects...
Oh Pam, that is just awful! Hugs. Xx
What is happening with this Country?
Hope you're ok Pamela
Big hug xxx
good luck with this petition. yes we do suffer. life is impaired. I have absolutely no support from any service. it is abysmal.
It's terrible Lou on all counts!
'tis petal ! XXX
hi robert !! yep. still battling for the dla !! not succeeding as yet, but god loves a trier !! LOL !! advocacy, is just what i need. have started phoning round today funnily enough !! fingers crossed i find someone !! watch this space !!! hope you are well. XXX
I would love our prime minister to have m.e for a week! Then he would do something!
he would soon learn if he spent a week with the sufferer how heartbreaking it can be and how much more is needed in terms of finace support and research to find a cure for this unforgiving illness.
Well apparently according to ATOS he would be fit for work and have a really good prognosis of recovery..so I presume he would still be in command!! ROFL x x
It is time for change and we have to unite and shout to make this a possibility.
I've signed it. I've been managing to control mine since a big relapse last year, but I'm still on pregabalin, and still feel like its looming, despite this time, feeling more in control than ever. Xxxxx how about you?
In a sense it is better than it has been in a long time but it has been unstable over the last month. My charity work has taken a hit so am just trying to manage it so I can get some more work done. I am lucky really. I am glad yours is stabilising somewhat xxx
There needs to be something done in the treatment of this debilitating and painful illness. Please devote more resources to research so that we can find a cause! Too many people are suffering and this needs to be prioritized.
Seriously. Cancer, disease and undiagnosed/misdiagnosed illnesses are a worldwide problem. Since the government wants to get involved in people's lives anyway, why not get involved in a way that will help people? A friend who is directly affected by this illness sent me the link and it only takes a moment of time to get involved and sign a petition.
I can understand the confusion- but actually chronic fatigue is just an offshoot, one of the many symptoms in a mix of this illness.
I have had M.E for 14 years now and it is something I have to live for now!
hi debbie cliftonpark court off t cliftonville area its taxed 2 end feb mot is up next month, but will pass npz if u want 2 call out hve wee look at it.
done loads of work 2 my wee car hve all recipets here running like new.
My daughter has M.E. and every day is a struggle. She has had her disability money stopped and was put in the return to work group and she now has been told to go to Court and fight as the government do not recognise M. E. as a disability. This has put another load of stress and worry on her.
My 14 year old bright daughter can hardly lift her eyelids let alone her limbs in the morning! She is supposed to do GCSEs next year! I pray she hasn't got it that bad! Shewas unwell last year and limited and it got better then she went down again a year later from first time! It drains me as mother!
I was diagnosed in 1989, and so far, almost no help from anyone in the medical profession, in spite of growing eviidence of the severe damage this illness causes to the victims, their families and to finances of all. Need serious research. I am REALLY fed up with being ill!
I have had M.E for nine years now and it is something I have to live with but why should my family?