Michelle Lister
Michelle Lister

For me I was pregnant with my third daughter. I went to my maternity Dr appointment and showed her a lump I had found. She just waved her hand and told me "it's nothing". So I believed her and went on to have a beautiful baby. I could still feel the lump in my breast and decided to get a second opinion. The second Dr did the right thing and had me go in for testing. I had a mammogram, but because I was still nursing it was hard for them to determine for sure but they thought it was...

For me I was pregnant with my third daughter. I went to my maternity Dr appointment and showed her a lump I had found. She just waved her hand and told me "it's nothing". So I believed her and went on to have a beautiful baby. I could still feel the lump in my breast and decided to get a second opinion. The second Dr did the right thing and had me go in for testing. I had a mammogram, but because I was still nursing it was hard for them to determine for sure but they thought it was nothing. They then sent me for an ultra sound guided biopsy. I had 3 needle biopsy and the results were it was not cancer. I was then referred to a surgeon. He wanted to remove the lump but since I was nursing and it wasn't cancerous, I asked to carry on nursing. He wanted to do a follow up in 3 months to keep an eye on it. When I came back he thought it had grown and wanted to do another biopsy. I agreed and that is when it all finally came back I did have breast cancer. I was rushed in for surgery and shortly after they did an ultrasound. That is when I found out it was too late and I was already Stage 4. So even though I found my lump early I wasn't taken serious by my doctor and all the medical testing let me down. So I find it hard to see all the funds we raise going to "early detection and awareness". If they put more funding into late stage researching we would have better drugs, with less side effects and perhaps a cure. I want to raise my children and not like this. I constantly have a noose around my neck and I never know when the floor is going to give out from under me. It's a brutal way to have to live, but our alternative is death! Please help us change how the funds are allocated and help us live longer.

Kathy Thomas
Kathy Thomas
  • Michelle Lister

I was 36 years old in 1999 with a husband, 3 children ages 9, 7 and 5, 2 dogs, and 2 cats. I did not have any family history of breast cancer and according to the "experts" had 0 risk of getting it. My OBGYN sent me for a 'Baseline Mammogram" as he called it when I turned 35, and when I finally went, I was told I had a 1.1 cm tumor, Stage 1 DCIC, and although it was invasive I had nothing to really worry about. I would have chemo, radiation and put on drugs that would lower my risk of it...

I was 36 years old in 1999 with a husband, 3 children ages 9, 7 and 5, 2 dogs, and 2 cats. I did not have any family history of breast cancer and according to the "experts" had 0 risk of getting it. My OBGYN sent me for a 'Baseline Mammogram" as he called it when I turned 35, and when I finally went, I was told I had a 1.1 cm tumor, Stage 1 DCIC, and although it was invasive I had nothing to really worry about. I would have chemo, radiation and put on drugs that would lower my risk of it spreading or recurring. I felt so lucky to get the "Pink Cancer"! Then 10 years after my first diagnosis, in 2008, I was told the cancer spread to 12 of my vertebra, ribs, pelvis and tailbone. I was now Stage IV. I had been living in a "Pink World" thinking I had a cancer that is always cured. Everywhere I go I am bombarded by pink commercials, pink products, hospitals devoted to the pink disease and fundraisers for all the "survivors" of the pink cancer. Our family goes to the Detroit Race for a Cure. My children were living in a world of false hope of my never having it again. But my cancer is not pink. My cancer continues to spread and is now in my right hip and femur and my lungs. All the pink fundraisers in the world can't stop cancer from spreading, so how about we spend more money on metastatic breast cancer. I am not a pink 'survivor' I am a "Cancer Fighter"! I want to live longer. What color am I?

Michelle Lister
Michelle Lister
  • Michelle Lister

For me I was pregnant with my third daughter. I went to my maternity Dr appointment and showed her a lump I had found. She just waved her hand and told me "it's nothing". So I believed her and went on to have a beautiful baby. I could still feel the lump in my breast and decided to get a second opinion. The second Dr did the right thing and had me go in for testing. I had a mammogram, but because I was still nursing it was hard for them to determine for sure but they thought it was...

For me I was pregnant with my third daughter. I went to my maternity Dr appointment and showed her a lump I had found. She just waved her hand and told me "it's nothing". So I believed her and went on to have a beautiful baby. I could still feel the lump in my breast and decided to get a second opinion. The second Dr did the right thing and had me go in for testing. I had a mammogram, but because I was still nursing it was hard for them to determine for sure but they thought it was nothing. They then sent me for an ultra sound guided biopsy. I had 3 needle biopsy and the results were it was not cancer. I was then referred to a surgeon. He wanted to remove the lump but since I was nursing and it wasn't cancerous, I asked to carry on nursing. He wanted to do a follow up in 3 months to keep an eye on it. When I came back he thought it had grown and wanted to do another biopsy. I agreed and that is when it all finally came back I did have breast cancer. I was rushed in for surgery and shortly after they did an ultrasound. That is when I found out it was too late and I was already Stage 4. So even though I found my lump early I wasn't taken serious by my doctor and all the medical testing let me down. So I find it hard to see all the funds we raise going to "early detection and awareness". If they put more funding into late stage researching we would have better drugs, with less side effects and perhaps a cure. I want to raise my children and not like this. I constantly have a noose around my neck and I never know when the floor is going to give out from under me. It's a brutal way to have to live, but our alternative is death! Please help us change how the funds are allocated and help us live longer.

Michelle Davidson
Michelle Davidson
  • Michelle Lister

thanks for sharing your story makes it even more real than it already is for some of us

Sheri Parsons-Laidley
Sheri Parsons-Laidley
  • Michelle Lister

I think of you, your family and your endless fight daily. You are an inspiring woman.

Gyri Wergeland Vallevik
Gyri Wergeland Vallevik
  • Michelle Lister

Did you write...? Thinking alot about you! xoxo

Lorena Tobar De Diaz
Lorena Tobar De Diaz
  • Michelle Lister

You are such and inspiring women.. Keep fighting!!!

Ruth McGinn
Ruth McGinn
  • Michelle Lister

Excellent message I think of you so often Wanted to "share" this and the article to my wall but couldn't' see where to do that Thought Id spread your message a little further

Karen Noble
Karen Noble
  • Michelle Lister

Thank you Michelle for sharing that. Its unbelieveable but I think this has happened many times to women....I am so praying that you'll be here for a loooong time . You got youth and a healthy regimen on your side ..: ))

Michelle Lister
Michelle Lister
  • Michelle Lister

I wasn't aware this would show up on my wall. Ruth if you click on this cause their is a place you can sign the petition and share it. Thanks for your support. i still have to send you that package. Is it possible for you to drop it of at the school. I know you don't work there anymore. I am the biggestprocrastinator ever. :(

Evan Polowick
Evan Polowick
  • Michelle Lister

Great post Michelle...I think it important for you to share with us so others can relate and or learn of the challenges you and other women face in reality... We all want you to raise your three beautiful girls without always wondering about tomorrow. We love you.

Tammy Louise Goff
Tammy Louise Goff

In 2002 at 32yrs. old when I was stage IIb I was in awe at the amount of support and help available to myself and my family, and organization even sent bears and coloring books to my children xplaining the things mom was going through.. However at age 41 I was diagnosed with mets to every bone in my body that soon invaded my liver! Now at stage IV I soo desperately needed that support that I THOUGHT was there! However I soon discovered that there's next to nothing out there for stage IV all...

In 2002 at 32yrs. old when I was stage IIb I was in awe at the amount of support and help available to myself and my family, and organization even sent bears and coloring books to my children xplaining the things mom was going through.. However at age 41 I was diagnosed with mets to every bone in my body that soon invaded my liver! Now at stage IV I soo desperately needed that support that I THOUGHT was there! However I soon discovered that there's next to nothing out there for stage IV all I seemed to get was alot of scared looks and a sorry your dying vibe from people.. I soon even discovered that most of the organizations I both raised and donated to for yrs.. only seemed concerned with spending on awareness (a bunch of pink pens n stupid bobbles that are usually thrown away).. Well now that I'm stage Iv my life depends on things like research and trials.. I wish a pink pen or a bunch of silly pink ribbons (i hate pink) would save me as id contributed lots over the years for them however they wont do a damn thing to cure this disease or fund my treatments.. I cant even get PET scans without paying for them on medicaid in SYR. N.Y. where I live but there's no organization to cover that either.. Shoot after being robbed from a career I loved due to the risk of bone fracture I'm not even a candidate for Cancer treatment centers of america or md anderson or any of the AWESOME places that could help me! Why because ive been reduced to public insurane and am apparently sopose to hide in the corner and wait to die, as god forbid they should use a strong woman fighting stage IV to represent breast cancer in any way.. Honestly a big majority of us soo called survivors are back within 10-15 yrs. looking a death sentence in the face.. But for some reason WE recieve very little support or attention and are alotted 1 lousy day in the month of Oct. to try to spread awareness while the other 30 days are filled with spreading bobbles awareness and early detection! Well I was diagnosed the 1st time in Oct. I got plenty of bobbles caught my cancer early and was DEFINATELY very aware! Now that I'm looking at 1-2yrs to live and worried I wont see my youngest graduate or my children married etc where's the support because I need it now more than ever.. Please help us by signing this petition to help change tis system that's set up to fail those that REALLY NEED the support and awareness.. Sorry so long thank you.. Tammy Louise Goff.

Michelle Harrold Arnold
Michelle Harrold Arnold
  • Tammy Louise Goff

Grrrr! Won't let me sign! Keep getting an "error on page" message.

Tammy Louise Goff
Tammy Louise Goff
  • Tammy Louise Goff

WTF thats stupid..sorry guys that sucks cause this is a cause I very much believe in and have been choking on since they gave me my terminal diagnosis a yr. ago.. Hmm im gonna see if i can fix it or invite more people or something.. maybe try the other link further down on my page as i shared it last night but never commented till this morning

Sondra Gianni
Sondra Gianni
  • Tammy Louise Goff

It let me sign itl, I wanted to share your post but theres no way to share. And this is news to Michelle and I and a lot of other people I.m sure. People assume donations are helping you as well as all these fancy hospitals they advertise on tv and their not. I am so sorry Tam. What else can we do.

Tammy Louise Goff
Tammy Louise Goff
  • Tammy Louise Goff

Son honestly as i said in my comments on the subject i recieved endless support when my outcome wasnt as serious.. for some reason they put all of us terminal patients in the closet.. Maybe its my lovely disposition lmao idk.. I will ask anyone making ny donations to any organizations due to my disease to be sure the donation either goes to research or the patients themselves for expenses as u will soon discover most of it dont

Theresa Palomares
Theresa Palomares
  • Tammy Louise Goff

Michelle Harrold Arnold Please keep trying, there were some internet issues that I experienced on this page today also-please try again! Thank you in advance!

Theresa Palomares
Theresa Palomares
  • Tammy Louise Goff

Tammy Louise Goff Please keep trying, there were some internet issues that I experienced on this page today also-please try again! Thank you in advance and thank you for sharing your personal experience, life has it's challenges but add stage 4 breast cancer mets to the mix and you surely are fighting the battle of your life!

Pam Lewis
Pam Lewis
  • Tammy Louise Goff

Michelle Harrold Arnold try to double click wouldnt let me at first so i did that and it worked

Lorien Murray
Lorien Murray
  • Tammy Louise Goff

Tammy you post is AWESOME and exactly why there needs to be something done to raise not just awareness of MBC but also some freaking support! I was diagnosed inititally at stage IV 2 years ago at age 36. I've got 3 kids, my youngest only 18 months at the time and my doctor telling me I'm going to die, 2-3 years, blah blah and hands me a card for a support group and that's it. Really?! Anyway, there is a really awesome support group here on FB for those of us with MBC called the New Close...

Tammy you post is AWESOME and exactly why there needs to be something done to raise not just awareness of MBC but also some freaking support! I was diagnosed inititally at stage IV 2 years ago at age 36. I've got 3 kids, my youngest only 18 months at the time and my doctor telling me I'm going to die, 2-3 years, blah blah and hands me a card for a support group and that's it. Really?! Anyway, there is a really awesome support group here on FB for those of us with MBC called the New Close Metastatic Breast Cancer Group (yes, long name...long story). You sould like you would fit right in!

Tammy Louise Goff
Tammy Louise Goff
  • Tammy Louise Goff

Cant find this group will keep trying ;)

Kathy Thomas
Kathy Thomas

I was 36 years old in 1999 with a husband, 3 children ages 9, 7 and 5, 2 dogs, and 2 cats. I did not have any family history of breast cancer and according to the "experts" had 0 risk of getting it. My OBGYN sent me for a 'Baseline Mammogram" as he called it when I turned 35, and when I finally went, I was told I had a 1.1 cm tumor, Stage 1 DCIC, and although it was invasive I had nothing to really worry about. I would have chemo, radiation and put on drugs that would lower my risk of it...

I was 36 years old in 1999 with a husband, 3 children ages 9, 7 and 5, 2 dogs, and 2 cats. I did not have any family history of breast cancer and according to the "experts" had 0 risk of getting it. My OBGYN sent me for a 'Baseline Mammogram" as he called it when I turned 35, and when I finally went, I was told I had a 1.1 cm tumor, Stage 1 DCIC, and although it was invasive I had nothing to really worry about. I would have chemo, radiation and put on drugs that would lower my risk of it spreading or recurring. I felt so lucky to get the "Pink Cancer"! Then 10 years after my first diagnosis, in 2008, I was told the cancer spread to 12 of my vertebra, ribs, pelvis and tailbone. I was now Stage IV. I had been living in a "Pink World" thinking I had a cancer that is always cured. Everywhere I go I am bombarded by pink commercials, pink products, hospitals devoted to the pink disease and fundraisers for all the "survivors" of the pink cancer. Our family goes to the Detroit Race for a Cure. My children were living in a world of false hope of my never having it again. But my cancer is not pink. My cancer continues to spread and is now in my right hip and femur and my lungs. All the pink fundraisers in the world can't stop cancer from spreading, so how about we spend more money on metastatic breast cancer. I am not a pink 'survivor' I am a "Cancer Fighter"! I want to live longer. What color am I?

Amanda Davisson
Amanda Davisson
  • Kathy Thomas

Love you!

Stacy Andrews
Stacy Andrews
  • Kathy Thomas

Once again, well said! AMEN!

Marchel Feick Racklyeft
Marchel Feick Racklyeft
  • Kathy Thomas

Oh Kathy, I am so sorry and praying for you. I signed the Petition. Your color needs to be purple -- brave and courageous.

Rhonda Coleman Meek
Rhonda Coleman Meek
  • Kathy Thomas

Wow, what a powerful statement Kathy, you brought tears to my eyes. You are a fighter and I will pray God continues to give you strength for the battle. Red is your color for courage, passion, love. Every year I walk in the Making Strides for Breast Cancer & this year I will dedicate my walk in support of you. Keeping you and your family in my prayers. <3

Marsha Patterson
Marsha Patterson
  • Kathy Thomas

Color of Hope, Love

Marsha Patterson
Marsha Patterson
  • Kathy Thomas

A rainbow

Janet Kok
Janet Kok
  • Kathy Thomas

pls juice organic papaya (before ripen) with skin, flesh and seed, every day drink a cup, u will see magic

Sally Bruner Drees
Sally Bruner Drees

I signed! I was diagnosed originally as an "early stager" in late 2006. Did everything I was supposed to do -- bilateral mast, chemo and four years of Tamoxifen, but the beast spread anyway - four and a half years from my original diagnosis. I am now Stage IV and feel like people out there do not understand that through all the pink, women AND men are still dying at almost the same rate they were 20 years ago. No one can tell us why some of us metastasize and other's don't. Until that...

I signed! I was diagnosed originally as an "early stager" in late 2006. Did everything I was supposed to do -- bilateral mast, chemo and four years of Tamoxifen, but the beast spread anyway - four and a half years from my original diagnosis. I am now Stage IV and feel like people out there do not understand that through all the pink, women AND men are still dying at almost the same rate they were 20 years ago. No one can tell us why some of us metastasize and other's don't. Until that question can be answered we are no where near a cure. We need funding for metastatic research. Please don't continue to support writing off the Mets girls - we want to live, too. We are warriors to - fighting to live every single day.

Rachel Boullion Wickman
Rachel Boullion Wickman
  • Sally Bruner Drees

Hell yeah we are!!!

Dawn Fenendael Parizek
Dawn Fenendael Parizek
  • Sally Bruner Drees

I signed!!

Dawn Fenendael Parizek
Dawn Fenendael Parizek
  • Sally Bruner Drees

And forwarded on to 25 friends.

Jaimie Spring
Jaimie Spring
  • Sally Bruner Drees

Well said! Much love to you my met Sista:-)

Toni Esposito Johnson
Toni Esposito Johnson
  • Sally Bruner Drees

Absolutely agree with this! With you 100%.

Kathy Thomas
Kathy Thomas
  • Sally Bruner Drees

Stage IV --- We are the true warriors!!!

Deshan Irendra de Silva
Deshan Irendra de Silva
  • Sally Bruner Drees

Dear Friends only more 39 day's to be left hurry up sign and invite your friends also to sign this.......help us to reach our goal.http://www.causes.com/actions/1730991-ban-jamaat-e-islami-from-bangladeshi-politics?ctm=recommended_activities.

Delphine Williams
Delphine Williams

I'm happy to sign.......a cause very close to my heart.

Tonderlaya Furman
Tonderlaya Furman
  • Delphine Williams

Let's keep it moving, Del!

Linda MacKenzie
Linda MacKenzie

This is really important to me.

Norma Marland Sjogren
Norma Marland Sjogren
  • Linda MacKenzie

I signed it, Lin...it's important to me too, Love ya

Cora Lillemon
Cora Lillemon

Ok now I'm really scared. To start off, I did sign the cause. In 2005 I found a lump, got a mamo followed by an altra sound with a follow up with my doctor. She said density. In 2005 the same thing but she said density with cysts. In 2006, 2007, 2008, 2009 and 2010. All the same thing, "it's nothing but tissue density with possible cysts". why possible I ask," because of the density we can't see all of your tissue" I'm told. "Don't worry so much, your fine". Well my mother had breast cancer...

Ok now I'm really scared. To start off, I did sign the cause. In 2005 I found a lump, got a mamo followed by an altra sound with a follow up with my doctor. She said density. In 2005 the same thing but she said density with cysts. In 2006, 2007, 2008, 2009 and 2010. All the same thing, "it's nothing but tissue density with possible cysts". why possible I ask," because of the density we can't see all of your tissue" I'm told. "Don't worry so much, your fine". Well my mother had breast cancer so I always worried. On Easter day 2011 I felt a lump so big it felt like a gulf ball. I told my family, this time I'm doing it different, I'm going right to an oncologist and skipping the GYN. He sent me for a mammo followed by an altra sound, he thought there was good cause for a biopsy. A week later I'm diagnosed with stage 3B breast cancer. 5 centermeters big. Doctor said that for it to be so big it had to be growing for 8 to 10 years. was I missed diagnosed all this time I asked. Yes, he said. How I ask when I have had a mammo every 2 years since I was 21 than every year since 2005? He tells me that breast density is often the cause for this. most doctors don't feel they have to look for further reasons for the lump. So my advice is if you fine a lump and they do a mammo and an altra sound than there's enough reason to get a biopsy. I went through a lumpectomy which took about 1/3 of my breast, 7 months of chemo, (the Anderson Method), 7 weeks of radiation daily and now 5 years of chemo pills. I couldn't get support no where, not finachially anyhow. I couldn't even find anyplace that would help me borrow a wheelchair because I was to weak to walk any distance on my own.
The only support I was offered was group councelling. No thank you but can you help me get this bill payed? No sorry is what I was always told. Anyway, I can't imagine what it would be like to get it back because if there's no research or not enough that would pretty much make me a statistic wouldn't it?
So on that note, I'm in for whatever it is we need to do to cause an awareness to raise more money for stage 4 breast cancer. Your friend in suffering, Cora Lillemon.

Cora Lillemon
Cora Lillemon
  • Cora Lillemon

Thank you Dee, and I know your there. I know if I were to pick up the phone you would be on the other end. Love you too. :)

Overseer Reva Ferrell Chaney

PRAYER CHANGES ALL THINGS AMEN' LET US TOGETHER PRAY WITHOUT CEASING.

Lajuan Pastor Davis
Lajuan Pastor Davis
  • Overseer Reva Ferrell Chaney

Amen

Carmen Roll
Carmen Roll

It will not let me sign the petition.

Theresa Palomares
Theresa Palomares
  • Carmen Roll

Dear Carmen, I have had some folks tell me that they had trouble signing and then realized they were not using the same facebook name, please try again as every signature matters. Thank you!

Nicholas Le Guern
Nicholas Le Guern

My dear wife is a survivor by Gods grace. Fortunately, she had it diagnosed and treated in stage 1 and is in great shape, Thanks to the good doctors and her sister surgeon at Mt. Sinai Hospital NY.

Dot Webb
Dot Webb
  • Nicholas Le Guern

Thats great news Nick, I too am a surviver by Gods grace

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