Tiffany Clements
Tiffany Clements

Please sign, not only for my child, but for everyone else out there suffering! Thank you sooooo much!

Lori Rollins Hall
Lori Rollins Hall
  • Tiffany Clements

You know girl I already have signed it. Let me knowif I can do anything else from this end. Luv ya. :)

Justine Putman
Justine Putman
  • Tiffany Clements

Can u do it for me? My phone wont let me. (Its not smart) and thats the only internet i have :/

Danny Hancock
Danny Hancock
  • Tiffany Clements

Done

Serita Marlin
Serita Marlin
  • Tiffany Clements

Signed!

Kat Eickhoff
Kat Eickhoff
  • Tiffany Clements

Signed

Gail Miller-Mccarty
Gail Miller-Mccarty
  • Tiffany Clements

Signed. :)

Tiffany Clements
Tiffany Clements
  • Tiffany Clements

Thank y'all soooo much!!

Tanya Taylor
Tanya Taylor

I see where I posted in July. I still do not have a dr to get the nutrition in. I'm 96-97 lbs now. I'm having charlie horses, not just in my calves, but under my tongue and neck, my right arm from shoulder to elbow. A vein in my right lung ruptured collapsing 2 bronchi, and since I'm allergic to all narcotics, with the exception of Demerol, MD hospitals will not give me anything. They are more than happy to give me drugs that will kill me, or make me break out in a bloody peppered rash,...

I see where I posted in July. I still do not have a dr to get the nutrition in. I'm 96-97 lbs now. I'm having charlie horses, not just in my calves, but under my tongue and neck, my right arm from shoulder to elbow. A vein in my right lung ruptured collapsing 2 bronchi, and since I'm allergic to all narcotics, with the exception of Demerol, MD hospitals will not give me anything. They are more than happy to give me drugs that will kill me, or make me break out in a bloody peppered rash, or puke my guts up without breaks. Ugghh. I'm still trying to find a dr. I see a dr this Tues, Oct 23rd. I'm looking forward to this visit. This dr came recommended by someone who's family is sick with this, and the dr actually calls them back. Not the nurse or secretary, but the dr. He has helped them out so much, I am hoping for the same. I'm not feeling so well, and having problems with my breathing as well. It is imperative they pass this Bill. Are we all supposed to live off of air and Faith while this horrific illness takes over more lives?

Chad Baynar
Chad Baynar
  • Tanya Taylor

You will get better Tanya

Tiffany Allison Churchill
Tiffany Allison Churchill
  • Tanya Taylor

Hugs where do you live? I know a good doc

Tiffany Allison Churchill
Tiffany Allison Churchill
  • Tanya Taylor

Oh I see u r in Maryland. I am in Savannah. He is a good doc but like all the docs who recognize this condition he can not get it figured out. I actually worked for him as his nurse and he diagnosed me. I landed in the hospital with an ng tube (sucked bad ) soon after it bit so bad I had to quit working. Just couldnt get a normal day of work done due to the frequency of the flares. So currently I just take it one day at a time and homeschool my son. Hope u have a little break soon.

Tanya Taylor
Tanya Taylor
  • Tanya Taylor

I've had to travel to different states to find a doctor. I still continue to schedule and go on appointments in Maryland hoping to end up with at least and Internist or Family Doctor in MD to keep all of the records straight with the other specialists. That way I don't fall between the cracks again. The effects of starvation I wouldn't wish on anyone. I wouldn't wish harmful things on anyone anyway. Not nice. I see a dr in NY this Tues. I am hoping to begin to find relief from the...

I've had to travel to different states to find a doctor. I still continue to schedule and go on appointments in Maryland hoping to end up with at least and Internist or Family Doctor in MD to keep all of the records straight with the other specialists. That way I don't fall between the cracks again. The effects of starvation I wouldn't wish on anyone. I wouldn't wish harmful things on anyone anyway. Not nice. I see a dr in NY this Tues. I am hoping to begin to find relief from the isolation of those who do not understand how every day is like Russian Roulette, when you get to a certain point from lack of nutrition. I believe I will get better too Chad Baynar. So difficult but still able to get to a point where I can hide how bad I feel. Thank you Tiffany Allison Churchill for reaching out. I was in Florida a couple of weeks ago, staying with and visiting some incredible friends who have GP (plus) as well. GP seems to be accompanied by several other common health problems. It gives me such a strength to help me get through. Thank you all for your friendship!!

Annemarie Jones Spiller
Annemarie Jones Spiller
  • Tanya Taylor

My sister-in-law has a gastric pacemaker, and I wonder if you would benefit from it as well.

Tanya Taylor
Tanya Taylor
  • Tanya Taylor

I've been wondering myself, but have been told not a candidate. That's what they say about the jtube, not a candidate because of the small intestine not functioning properly. I just don't believe so much I am told. So many contradictions from drs I know I need to make sure I do the research before every trying anything again. The tpn gives me the life threatening blood infections because of my allergies. I try so hard. I see a dr in NY on Tuesday. Hoping to have some answers and more...

I've been wondering myself, but have been told not a candidate. That's what they say about the jtube, not a candidate because of the small intestine not functioning properly. I just don't believe so much I am told. So many contradictions from drs I know I need to make sure I do the research before every trying anything again. The tpn gives me the life threatening blood infections because of my allergies. I try so hard. I see a dr in NY on Tuesday. Hoping to have some answers and more info at that point. I'm taking research and ideas as well to the appointment. Thank you for suggesting the pacer. I don't understand why that won't help me either. I just think too many doctors lacking education and I just need to find the right doctors for this. Until we make this known all over, we need to keep sticking together to keep giving each other info. Is your sister-in-law doing okay now?

Tanya Taylor
Tanya Taylor
  • Tanya Taylor

Annemarie Jones Bolender has she had a viral panel run. I think we need to all have viral panels run and compare results. Perhaps one of the viruses, or a couple of viruses are most common and creating most of this to begin with. Pulled out my Microbiology Book and Anatomy and Physiology book to do research from basics. Who knows what that will lead to.

Alberta Eaton
Alberta Eaton

I signed.... I think. Firefox is preventing a "pop-up" window.

Judith A. Fleeger
Judith A. Fleeger
  • Alberta Eaton

I think Firefox is preventing me from signing also

Tanya Taylor
Tanya Taylor
  • Alberta Eaton

Were you able to eventually sign?

Traci Jones
Traci Jones

I had A g-j feeding tube from 2007-2010 when I had a gastric pacemaker placed. It has meant the world to me , it has allowed me to eat again. Before that I was unable to hold anything down. Gastroparesis has effected my entire digetive tract and although I am now able to eat, I still have problems and pain. Please help find anwers to this debilitating disease.

Ruth Dey
Ruth Dey

Please sign. You never know when it could affect you.

Jessie Ramos Baker
Jessie Ramos Baker

I HOPE AND PRAY FOR ALL TO BE HEALED ONE DAY...LOVE AND GOD BLESS US ALL.

Kathleen Baugham
Kathleen Baugham

I have recently been diagnosed with this illness and was not told it could be life threatening thank you for starting this movement and for telling me more than my doctors did.

Sonja Winters Orr
Sonja Winters Orr

My name is Aaron fish I have gp I am 35 mother of 3 and had for 5 yrs I was diagnosed

Sharon Ann
Sharon Ann

Please help in finding a cure.

Kristi Patzman
Kristi Patzman

Please help... It isn't a way of life, even on a j tube my weight that went up is beginning to drop dangerously low again... It's weird but when I look in the mirror, it's not the tube that affects me the most, it's seeing my bones sticking out through my skin...

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