I lost my father at the age of 14 to this horrible diease...I support this cause!
I lost my late husband to Bulbar ALS in Jan. 2002.
I cannot begin to tell you how shocked we were to learn of his illness in this very active, athletic man as all of you were with your loved ones and friends diagnosised with this dastardly diseased. I am so sorry for your losses.
Throughout my life ALS has always been there in some form. One of my favorite movies growing up was the Lou Gehrig Story. I have no idea why, but it touched me deeply.
ALS was to be expected among some my...
ALS was to be expected among some my patients at the hospital where I worked, yet it was so unexpected and difficult to process that three of our former neighbors in different cities (two different States) also passed away from ALS. One of my friends from high school husband had ALS. Shockingly, a neighbor where I now lived passed away from Bulbar ALS last year!
The most chilling experience I have had was three years ago while standing in drug store here in Mt. Juliet looking for a stuffed animal when the lady to left of me said, “I am trying to find something comforting to hold at night since my husband passed away from ALS.” My mouth dropped opened then I confided in her that this is what I was also doing for the exact same reason. When out of the blue, the lady to the right of me asked, “What did we just say, did she overhear ALS mentioned?” Confirming this was indeed our conversation, the lady of the right of me began to cry as she shared with us her husband had passed away two weeks ago from ALS! What are the odds of this happening… yes it is a true story.
This will be my 10th Walk to Defeat ALS, but this year although it will be bittersweet, I now will walk with renewed hope that the recent announcement from ALS Researchers latest findings has brought us closer to a cause, a cure and hopeful eradication of ALS. It is long overdue, it has been a long time coming since 1869.
Never give up open! Keep ALS awareness in the forefront and keep the funding for research coming in.
we need more research to reach the goal -a cure
I lost my mum To ALS in 2008 at 52 Years of age. We need to find a cure for this debilitating Disease R.I.P Mum xxx.
Yes everyone get behind finding a cure, my best mate is slowly losing his battle with MND, he is 44 years old with two young kids, it is just shattering to watch someone who was once strong and vibrant succumbing to one of the worst imaginable diseases with no cure as yet, so show your support in anyway you can. God bless Marnie for continuing the fight xx
I have lost 2 sisters to ALS...we need so much more research....need so much support!
I lost an Uncle and a friend, I support the cause
This is our cause. We will always fight to find a cure for this dreadful disease. We lost our 40 year old son, Brett, on October 26, 2010.
I lost my aunt too soon 2 years ago - I walk every year with my family in Sarasota. It is a fight worth fighting!
Lost my wife. My two sons just completed a 100 mile bike ride in support of the cause. A great deal of effort is needed in the research of ALS.
My husband was diagnosed a little over a year ago. Too few really know what this disease does to someone. Please educate yourself, because it can happen to ANYONE!
I lost my mom recently and agree we need to educate and research more.