I am 34 years old and I have Neurofibromatosis, I am unmarried, None of my parents had it, yet I got it, I suffer a lot from the pain of few of my glands, I have to face so many questions of people who look at me as if I am someone weird. A cure should surely be found
This cause is important to me because my 7 year old daughter Alyssa has Neurofibromatosis and I hate the pain, brain and spinal tumors, and optic nerve tumors and other medical problems this disorder cuases her as well as all my friend that suffer with Neurofibromatosis.
I have Nf and passed it onto my children and grandchildren. I had a brain tumour due to nf
None of my children have this but its important for all of us to stand together and give all the support to those our friends whose children have this.join this cause to help all who suffer with this.
My 7 year old cousin has it
This cause is very important to me as my 6yr old daughter has it..she's blind from optic gliomas, has numerous brain tumors and many other complications...a cure must be found!
this cause is important to me because if have neurofibromatosis and it causes me a lot of health problems and a lot of pain.
My total and full support. Why, this happens? Is a big injustice to the children and parents.
Hope that a cure will be found in a near future.
This cause is very important to me because I have a precious little friend, named Connor O'Brien, who has NF2. As a part of Connor's Crew ~ I wish to draw awareness to this disease and do what I can to support funding a cure.
My mam had this condition we wre not aware of what is was until she was in her 50's. My neice aslo has the condition.