Tina And-me
Tina And-me

This is so important to me because i am living with lupus and have for over 6 years now but in this time as well so much more is going wrong. i am 44 with 3 great daughters and a great son in- law and 1 15 month grandson that gives me my power not to give up. i have or it seems i lost so much because of lupus from myself, friends. family, and it seems like ppl dont understand fully just what we live with. so if we could find the perfect pill or better care then we can maybe be back to a...

This is so important to me because i am living with lupus and have for over 6 years now but in this time as well so much more is going wrong. i am 44 with 3 great daughters and a great son in- law and 1 15 month grandson that gives me my power not to give up. i have or it seems i lost so much because of lupus from myself, friends. family, and it seems like ppl dont understand fully just what we live with. so if we could find the perfect pill or better care then we can maybe be back to a half way or a quarter of what we were. i know we try to stay positive as we have no choice but i find myself wanting to take a walk in my woods and just keep walking and never look back until i cant walk no more. lupus alone is hard then you add all the other issue that come up as well as i myself am doing as the yrs go on. but i KNOW i have to find something to do to help the next group of people that end up with this illness not live the life i am living. . bless you all.

Natasha Davis
Natasha Davis

I was diagnosed with SLE Lupus April of 2011 and I can say Ive had my share of bad days and I dont wish it on no one!! Its hard when you have family and friends that see what you are going thru but its hard to explain because all you can say is you hurt! I have faith in God abd with my Faith I do believe all......I MEAN ALL things are possible!! I speak a total healing over you, you family member as well as myself!!

Natasha Davis
Natasha Davis
  • Natasha Davis

At the same time I was alson diagnosed with sjroghens. ..... God is a healer

Brandy Parfitt
Brandy Parfitt
  • Natasha Davis

Amen,I have so much faith in my God,I just found out that I have SLE LUPUS like 2 weeks ago and I don't no a whole lot about it, they have me taking hydroxchloroquine 200 mg,I also stay really tired alot but is there anything else you can tell me about lupus please??? I pray alot &I believe that's the best meds you can have!! I also have RA so that doesn't help either!! Thanks for your time and I will be praying for you sweetie!!!

Sharon Spero
Sharon Spero

The cause is dear to me as my family autoimmune disease that has affected almost every member of my family with Lupus affecting three members. One of these is my precious daughter who had symptoms beginning at age 16 and diagnosed with SLE at 17. It is not just a physically devastating disease but the difficulties go way beyond this. It is so difficult because the disease is not physically apparent all the time and people have no idea the suffering it causes. The attitude of many people who...

The cause is dear to me as my family autoimmune disease that has affected almost every member of my family with Lupus affecting three members. One of these is my precious daughter who had symptoms beginning at age 16 and diagnosed with SLE at 17. It is not just a physically devastating disease but the difficulties go way beyond this. It is so difficult because the disease is not physically apparent all the time and people have no idea the suffering it causes. The attitude of many people who operate under the premise that if it is not apparent at the time it does not exist and so making it so difficult for the patient and the family members all to deal with it. So in addition to the physically devastating problems and damage from the disease the inability of friends and family to understand and deal with it make it increaseingly difficult emtionally as well. It is a very lonely disease and my heart goes out to all Lupus patients -it takes a tower of strength to deal with this too. My daughter has fought a major battle with this from the time she should have been enjoying her teen years on up to now. We really need to fight a major battle to bring awareness to more of the public. It has become more so in recent years as more patients have become more public, especially high profile patients but the disease still remains such a mystery and education regarding what we do know and promoting research in every way possible needs to be promoted in every way posssible. Imagine having to deal with the pain, the breathing problems, the joint issues, kidney issues , neurological issues and seeing the blank espressions when you try to explain what is happening because of the mystery and lack of knowledge of the disease. Please, those of you who can walk, please do so and try to recruit so we can began to bring this forward.

Aida Nieves
Aida Nieves

The cause is near and dear to my heart I have lost many freinds to this illness and it seems that it doesnt get better , I was DX in 08 with SLE along with diabees, RA, asnd osteoarthritis. I will walk for the first time this year ..... Awareness

Darrell Cortez
Darrell Cortez

I lost my older sister to LUPUS in 2001. I remember the exact time of the onset of her symptoms of fatigue, that attacked her and left her bed-ridden for an entire weekend when I was still in high school in 1983. I have been always willing to make a stance to support the cause in her memory. I've donated to the organization before, but this will be my very first walk for the cause. VERY EXCITED.

Terrie Williams-Hickerson
Terrie Williams-Hickerson
  • Darrell Cortez

It's good people like you make a difference ...Thank you

Sylvia Letts
Sylvia Letts

I've been living with Lupus for 13 yrs.. Just want people to know it;s not just a sickness. It's a big change in my life. And it's a burden, to my love ones. It would be so easier to live with it if my family n friends would learn about it n understand it.

Cheryl Roop
Cheryl Roop

I was diagnosed in 2010. I am just learning my way through the disease and the effects.
Trying to find a "Help Group" in the Eastern Ky area.

Barbara Moore
Barbara Moore

I was diagnosed in 2004.

Trish Jones
Trish Jones

My mom passed away from Lupus when I was only 5.

Mary A Coleman
Mary A Coleman

My sister passed young with Lupus leaving a baby boy to be raised. He is know a fine young man

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