Noemi Acosta
Noemi Acosta

IS IMPORTANT TO ME BECAUSE MY DAUGHTER IN LAW HAS IT.I WILL WALK FOR THE FIRST TIME AND WLL KEEP WALKING TILL THEY FIND A CURE GOD BLESS EVERYONE WITH LUPUS NEVER GIVE UP HOPE.

Amanda Davis
Amanda Davis
  • Noemi Acosta

Sweet

Natasha Davis
Natasha Davis

I was diagnosed with SLE Lupus April of 2011 and I can say Ive had my share of bad days and I dont wish it on no one!! Its hard when you have family and friends that see what you are going thru but its hard to explain because all you can say is you hurt! I have faith in God abd with my Faith I do believe all......I MEAN ALL things are possible!! I speak a total healing over you, you family member as well as myself!!

Natasha Davis
Natasha Davis
  • Natasha Davis

At the same time I was alson diagnosed with sjroghens. ..... God is a healer

Brandy Parfitt
Brandy Parfitt
  • Natasha Davis

Amen,I have so much faith in my God,I just found out that I have SLE LUPUS like 2 weeks ago and I don't no a whole lot about it, they have me taking hydroxchloroquine 200 mg,I also stay really tired alot but is there anything else you can tell me about lupus please??? I pray alot &I believe that's the best meds you can have!! I also have RA so that doesn't help either!! Thanks for your time and I will be praying for you sweetie!!!

Trish Jones
Trish Jones

My mom passed away from Lupus when I was only 5.

Jill Stephens-Giles
Jill Stephens-Giles

I am Lupus warrior!

Olga Perez
Olga Perez

I was diagnosed with Discoid Lupus in 1991 then SLE in 1993. My Lupus came out of remission & brought some friends, i.e., Sjogren's, mmm.Fun. My best & prayers to all of you fighting Lupus & other autoimmune diseases. I would like to see a better world and hope for the young kids that get afflicted with this disease. A young lady of 23 yrs. old (Sasha McHale) and others should not die from this disease.

Amy Michelle Joseph
Amy Michelle Joseph

I was diagnosed with lupus in may of 2012 and I am a single mom of 5 , three of them being younger. I need to know everything that can help me to be aware of the disease and live the most normal life possible, so I can be the best mom to my children and live a fullfilling life.

Zeni B Thomas-cole
Zeni B Thomas-cole

I have lupus, a best friend die to lupus, a church member died,

Carrie Cherry
Carrie Cherry

Is a cause close to my heart. Loving all the research and information that is being discovered about this "well you look okay" disease.

Tina Coffey
Tina Coffey

This is so important to me because i am living with lupus and have for over 6 years now but in this time as well so much more is going wrong. i am 44 with 3 great daughters and a great son in- law and 1 15 month grandson that gives me my power not to give up. i have or it seems i lost so much because of lupus from myself, friends. family, and it seems like ppl dont understand fully just what we live with. so if we could find the perfect pill or better care then we can maybe be back to a...

This is so important to me because i am living with lupus and have for over 6 years now but in this time as well so much more is going wrong. i am 44 with 3 great daughters and a great son in- law and 1 15 month grandson that gives me my power not to give up. i have or it seems i lost so much because of lupus from myself, friends. family, and it seems like ppl dont understand fully just what we live with. so if we could find the perfect pill or better care then we can maybe be back to a half way or a quarter of what we were. i know we try to stay positive as we have no choice but i find myself wanting to take a walk in my woods and just keep walking and never look back until i cant walk no more. lupus alone is hard then you add all the other issue that come up as well as i myself am doing as the yrs go on. but i KNOW i have to find something to do to help the next group of people that end up with this illness not live the life i am living. . bless you all.

Sharon Spero
Sharon Spero

The cause is dear to me as my family autoimmune disease that has affected almost every member of my family with Lupus affecting three members. One of these is my precious daughter who had symptoms beginning at age 16 and diagnosed with SLE at 17. It is not just a physically devastating disease but the difficulties go way beyond this. It is so difficult because the disease is not physically apparent all the time and people have no idea the suffering it causes. The attitude of many people who...

The cause is dear to me as my family autoimmune disease that has affected almost every member of my family with Lupus affecting three members. One of these is my precious daughter who had symptoms beginning at age 16 and diagnosed with SLE at 17. It is not just a physically devastating disease but the difficulties go way beyond this. It is so difficult because the disease is not physically apparent all the time and people have no idea the suffering it causes. The attitude of many people who operate under the premise that if it is not apparent at the time it does not exist and so making it so difficult for the patient and the family members all to deal with it. So in addition to the physically devastating problems and damage from the disease the inability of friends and family to understand and deal with it make it increaseingly difficult emtionally as well. It is a very lonely disease and my heart goes out to all Lupus patients -it takes a tower of strength to deal with this too. My daughter has fought a major battle with this from the time she should have been enjoying her teen years on up to now. We really need to fight a major battle to bring awareness to more of the public. It has become more so in recent years as more patients have become more public, especially high profile patients but the disease still remains such a mystery and education regarding what we do know and promoting research in every way possible needs to be promoted in every way posssible. Imagine having to deal with the pain, the breathing problems, the joint issues, kidney issues , neurological issues and seeing the blank espressions when you try to explain what is happening because of the mystery and lack of knowledge of the disease. Please, those of you who can walk, please do so and try to recruit so we can began to bring this forward.

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