James Dickson
James Dickson

I also had chronic ME and I left me severely disabled and bed bound for just over 10 years. I was not treated with understanding by British doctors, their ignorance was disgusting. I was left at home suffering in pain and sever disability and they did not care or try and help. At the time the NHS did not train their doctors to understand or treat the illness. I was only given help 8 years ago when dr obrien at Southend hospital discovered my plight and approached the primary care trust for...

I also had chronic ME and I left me severely disabled and bed bound for just over 10 years. I was not treated with understanding by British doctors, their ignorance was disgusting. I was left at home suffering in pain and sever disability and they did not care or try and help. At the time the NHS did not train their doctors to understand or treat the illness. I was only given help 8 years ago when dr obrien at Southend hospital discovered my plight and approached the primary care trust for funding to send me to the chronic fatigue syndrome unit at old church hospital under professor Finley. I was great full of the opportunity to get my life back and worked hard. I left hospital a year later well enough to live on my own. Another year later I had made a full recovery. I am living proof that even the most severely effected ME sufferers can be treated successfully and make a full recovery. All it takes is doctors to recognise the serious nature of the illness and try and help.

Kojak Peg
Kojak Peg
  • James Dickson

And the most worrying thing is the UK is on of the most informed countries about m.e

Sarah Balfour
Sarah Balfour
  • James Dickson

I've been sectioned several times too. I've been becoming more and more sick for the past 2-3 years. I'm in constant pain, constantly fatigued lethargic and hungry - and a few days ago, I noticed my spine was curved!

Sarah Balfour
Sarah Balfour
  • James Dickson

Whoops! Don't know what happened there!

Blair Stanovie
Blair Stanovie

this is terrible, let the girl go or the parents should bring charges against the doctors and the people hollding her. If they don't beleive her, let her go

CJ Janzen
CJ Janzen
  • Blair Stanovie

They have to find out what laws the doctors are using first before legal action can be taken. We should be receiving an update on her status this coming week.

Willõ Withywindle
Willõ Withywindle

This is not by any means the first time this has happened and will not be the last.

Dennis Østergaard
Dennis Østergaard
  • Willõ Withywindle

But if everybody keeps up the EXELENT WORK off spreading the word via misc social networks and so on. . at least in DK , allmost the last time. .

Kojak Peg
Kojak Peg
  • Willõ Withywindle

That's it Dennis we just have to keep spreading the word and keeping the pressure up. like the movie the shawshank redemption just keep sending more and more letter until they have to give in

Dennis Østergaard
Dennis Østergaard
  • Willõ Withywindle

omg exatly what an exelent example!! aparently somthing is going on here in DK 2days ago i looked to be al long battle. . but now they ( ME foundation ) have in writing from misc Doctores where they denie everything. . that she can be wisited by whom ever. . and they are apparently beginning to acuse each other. if the are so stupid as to give the ME Foundation proff in writing. . ( even police repports has mystyrily ben misplased and so on ) this wil come and bite them in there a** sooner than expected i hope. .

Dennis Østergaard
Dennis Østergaard
  • Willõ Withywindle

Im in direct contact with karinas parrents. . ( via my childhood and still best frind karina`s bigbrother. .) som im following this closely as i have seen how much this affects not just karina but her parrents witch is in a serius financely problem and have ben forced to sell house and every thing to pay medical bills. . because she vas removed from our social health security arrengment. . witch no one i ask even thougt was possible as this follows you fro your born

Kojak Peg
Kojak Peg
  • Willõ Withywindle

God I had no Idea could you at that story to our facebook page www.facebook.com/JusticeForKarinaHansen

David Doherty
David Doherty
  • Willõ Withywindle

So sad but thank you for that update, selling a house to pay for mistreatment that is killing her, no words for the extent of this disgrace...

Kay Karen Lambert
Kay Karen Lambert

Chapter 33 of Hillary Johnson's: Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome (CFS) Epidemic is "HIV-NEGATIVE AIDS."
Neenyah Ostrom's book "America's Biggest Cover-up: 50 More Things...CFS & Its Link To AIDS" cites: "Some CFS Patients May Be Non-HIV AIDS Cases."
Will CFS ever make any progress unless we acknowledge this fact?
Published 14 times on 4 continents, my life w/ NON HIV AIDS: www.ukprogressive.co.uk/the-aids-like-disease-seldom-mentioned/article20891.html
Or simply google “NON HIV AIDS”

Ian Parker
Ian Parker
  • Kay Karen Lambert

Cfs is not linked to aids. Please do your research properly thank you

Kate Moody
Kate Moody

My heartfelt prayers of healing light & much love to Karina & her family. And may the Doctors & Danish authorities find it in their hearts to honor Karina's humanness & soul.

I really do feel for Karina, as I also had CFS (recovered now) and only know too well the devasting affects ignorance can have upon a soul.

Thinking of you all - and I shall do what I can to spread the awareness & word about Karina.

With all my love,
Kate

Veronica Andersen
Veronica Andersen
  • Kate Moody

How did you recover?

Sherrie Brereton
Sherrie Brereton

Disgusting! Poor young girl, as if her life hasn't been destroyed enough!

Kojak Peg
Kojak Peg
  • Sherrie Brereton

It is terrible and has been going on for over a year now, because they began threatening her over a year ago. And severe m.e on its own is like being tortured. So what they are doing is awful

Michelle Clayton
Michelle Clayton

OUTRAGED on her behalf. Surely one of the Danish Doctors has seen a paper on ME by a fellow Doctor who has had the condition first hand. Incrediblly tragic that this is happening in 2013!! This is not the dark ages! She is not mentally incapable, the GP's seem devoid of any 'understanding' so why have they decided to ACT? Is she harming anyone, bieng cared for at home? I have ME and I work p/t looking after a lady who has had the condition for some 17 years now. To her parents 'FIGHT', 'FIGHT', 'FIGHT'. X

Kojak Peg
Kojak Peg
  • Michelle Clayton

It is outrages. I often jokingly say, I would been better off in the dark ages, but when you read about Karina you realise it isn't a joke. It is deadly serious. At the beginning of my illness I was very fit, and tried to exercise my way back to health, but it made me worse. In the end I was bedridden. Thankfully, my GPs where simply ineffectual, which although not good to begin with. Did mean in the long run, I was left to learn and treat myself. Now I can get out of the house for short...

It is outrages. I often jokingly say, I would been better off in the dark ages, but when you read about Karina you realise it isn't a joke. It is deadly serious. At the beginning of my illness I was very fit, and tried to exercise my way back to health, but it made me worse. In the end I was bedridden. Thankfully, my GPs where simply ineffectual, which although not good to begin with. Did mean in the long run, I was left to learn and treat myself. Now I can get out of the house for short walks most days, because I learned to rested. And I really mean learned.

Vera  White
Vera White

I have the same disease.

Kojak Peg
Kojak Peg
  • Vera White

It is an awful illness isn't it. I went from very fit to very severe and bedridden in an instant. It was like being tortured every second of the day and the idea that someone could come and force me out of my home while I was in that state is horrifying. And when I tried to exercise my way back to health I just got worse and worse. So I know from experience that these Doctors do not know what they are doing.

Azure Hart
Azure Hart

The World Health Organization has recognized ME as a distinct debilitating neurological disease for decades. I know a test for it has not yet been developed but remember that MS was treated as "hysterical paralysis" before tests were developed for it.

My Aunt suffered through that misdiagnoses for her MS. She woke up blind one morning and her doctors diagnosed her with "hysterical blindness" and told her husband to put things in her path so that she would fall when walking around their...

The World Health Organization has recognized ME as a distinct debilitating neurological disease for decades. I know a test for it has not yet been developed but remember that MS was treated as "hysterical paralysis" before tests were developed for it.

My Aunt suffered through that misdiagnoses for her MS. She woke up blind one morning and her doctors diagnosed her with "hysterical blindness" and told her husband to put things in her path so that she would fall when walking around their home. They told him she would get tired of falling and decide to see again.

She was finally properly diagnosed 15 years later, after her husband had left her for "refusing to see". She died 2 years later from complications to the disease.

I myself suffer from either ME or a similar illness and have for the last 2 years. I have yet to get a diagnoses and have had doctors laugh at me and belittle me instead of helping. That so called professionals can act in this matter is appalling.

Kojak Peg
Kojak Peg
  • Azure Hart

I'm so sorry to hear about your Aunt. It is so shocking that these misdiagnose still go on, simply because Doctors are to arrogant to admit their own limitation. And since becoming ill myself and seeing it first hand and hearing stories about it. Not only from m.e but a whole spectrum of illnesses. I've been shocked into the realisation that the people we unthinkingly put all our trust in do not always deserve our trust. And as you point out it isn't just an m.e problem it is much more wide spread than that

CJ Janzen
CJ Janzen

At midnight EST we had only 115 signatures at 6:15pm we have around 540! Please keep passing this around. We CAN and WILL make a difference!

CJ Janzen
CJ Janzen
  • CJ Janzen

We have spoken to Rebecca Hansen - not related - and she says they will have an update for us this coming week.

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