Supporting those affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome or Post Viral Fatigue Syndrome, is a chronic, debilitating illness affecting more than 250,000 people in the U.K. alone. It has a devastating effect not only on those diagnosed with the condition, but also on their families and friends.
M.E./C.F.S. is classified by The World Health Organisation as a neurological disease. Previously dismissed by many as a "psychiatric paradigm" M.E./C.F.S. has now been proven to be a "genuine biomedical disease entity". (International Research Round-Up from I.A.C.F.S., Florida, "Interaction", Issue 59, March 2007.)
There is currently no cure for M.E./C.F.S. The illness is often misunderstood causing increased isolation. Those with the condition not only have to experience living with the wide range of painful and disabling symptoms, but often also have to convince others, including those in the medical profession, that they are physically ill.
M.E./C.F.S. affects men, women and children of all ages.
Symptoms include severe, unrelenting fatigue, chronic muscle pain, chronic joint pain, cognitive difficulties, sleep disorders, digestive disorders, and intense sensitivity to light and sound.
Many people with M.E./C.F.S. require a wheelchair, and an estimated 60,000 people diagnosed with the condition are house bound or bed bound.
"Living With M.E./C.F.S." sets out to provide a forum within which anyone affected by M.E./C.F.S. and related illnesses can exchange ideas, share experiences with others and pass on information about M.E./C.F.S. they have found useful.
Everyone living with M.E./C.F.S. has their story. It would be great if you felt you could share yours here...
1. Understanding that M.E./C.F.S. is a chronic, disabling, life-changing illness.
2. Exchanging ideas, information and experiences of Living with M.E./C.F.S.
3. Supporting people affected by M.E./C.F.S. including those diagnosed with the condition, their families, friends and carers.