We fund research aimed at finding a cure for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, cancer and immune system problems.
A Multi-system Disease...
Ataxia-telangiectasia, or "A-T," is a progressive, degenerative disease that affects a startling variety of body systems. Children with A-T appear normal at birth, and the first signs of the disease usually appear during the second year of life. These first signs are usually a "wobbly" lack of balance and slurred speech caused by "ataxia," which means a lack of muscle control (www.atcp.org).
A-T is presently incurable and unrelenting. If they are lucky enough not to develop cancer, most A-T children are dependent on wheelchairs by the age of ten, not because their muscles are too weak, but because they cannot control them. Later, A-T patients usually die from respiratory failure or cancer by their teens or early twenties. A few A-T patients live into their forties, but they are extremely rare (www.atcp.org).
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Ataxia Telangiectasia Children's Project, Inc.
a 501(c)(3) nonprofit (EIN: 65-0427215)