To find effective treatments and a Cure!


The Weldon FOP Research fund was established in 2001, in honor of our daughter Whitney, at the University of Pennsylvania. Fibrodysplasia Ossificans Progressiva is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another. A cure for FOP could help millions of people with common bone ailments. 

1. Finding a cure for FOP is not just a dream any more. It is a real possibility

2. No child should have to suffer this horrific disease and have their physical freedom stolen from them

3. "The discovery of the FOP gene is relevant to every condition that affects the formation of bone and every condition that affects the formation of the

4. FOP research has led to discoveries about basic bone formation. This can one day benefit millions suffering with more common bone conditions. For more information go to www.ifopa.org