This innovation could help our community tremendously

http://abcnews.go.com/Health/Wellness/epi-pen-epileptic-seizures-researchers-step-closer/story?id=15646106#.Tz5SYJhhU-g An Epi-pen to treat seizure emergencies would put epilepsy on par with other conditions such as anaphylaxis. How could someone agree to…Read More

Contact your states ARC organization

Another year has passed and many of our children or friends continue to be excluded from recreational activities and respite events. Take a moment to email your states ARC and tell them how excluding people who require Diastat has made a profound impact on…Read More

(no subject)

Supporters, I will be presenting to the Institute of Medicine Committee’s Workshop on Public Health Dimensions of the Epilepsies: Health Care Quality and Access and Education of Health Care Providers, Patients, and the Public on June 28-29, 2011. I have a…Read More

If you already complained to the Department of Justice

If you have filed a complaint with the Department of Justice, please post an update on what you have heard in response. If you heard nothing yet, re-send the email and ask for a response. Time to start planning now to get a meeting with your state…Read More

If you didn't tell the DoJ about you own child's diastat issue yet, please do

You can send and email to The Department of Justice at [email protected] Please copy the letter to Cherree Sanders, Case Coordination /Paralegal Jeanne A. Carpenter Epilepsy Legal Defense Fund at [email protected] State what happened, who the organization was…Read More

Today is epilepsy awareness day and a perfect day to tell the DoJ that excluding children with epilepsy is wrong as well as against the law

You can send and email to The Department of Justice at [email protected] Please copy the letter to Cherree Sanders, Case Coordination /Paralegal Jeanne A. Carpenter Epilepsy Legal Defense Fund at [email protected] State what happened, who the organization was…Read More

Thank you for being part of this important cause

We have 361 members now. 361 people care that children with epilepsy receive equal access to publicly funded recreational activities. Thank you for caring. March 26th is epilepsy awareness day. Please wear purple on epilepsy awareness day and invite one…Read More
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