My son is 3 years old and I hope to win the battle over this blinding disease.
Daniel has been to two diffferent eye doctors in the past month, and now wears glasses. He will see a specialist on Oct. 28 to discuss what we do next. I have researched alot on the disease and there is a new surgery but is not guarenteed to fix his eye sight. It is scary but if I don't try he will definatly go blind.
1. RP is a rare genetic disorder affecting 1 in 4,000 people.
2. There is no cure or treatment, but has been studies of a transplant of fetal eye cells that may stop this disease.