International EB Registry created!!!

Today, on International Rare Disease Day 2012, DEBRA International is delighted to announce the launch of www.ebcare.org, an INTERNATIONAL EPIDERMOLYSIS BULLOSA PATIENT REGISTRY! Check out the press release at http://tinyurl.com/79gsxy5. To my EB community…Read More

2011 International EB Awareness Week!

Hello, all - please JOIN the new Facebook Group, "2011 International Epidermolysis Bullosa Awareness Week" and invite ALL of your friends to join and participate! Thank you!

It begins TODAY, please do your part! :)

Today, Oct. 25th, is the first day of INTERNATIONAL EPIDERMOLYSIS BULLOSA AWARENESS WEEK. I heard fantastic news today about new EB organization start-ups and annual events. Please go to www.mywalkamile.org and get your global gallery posters and print them…Read More
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