To generate awareness of the dangers of the disease, mobilize support for their medical needs and shower them with love.
Sickle cell disease is an inherited blood disorder that affects red blood cells. People with sickle cell disease have red blood cells that contain mostly hemoglobin* S, an abnormal type of hemoglobin. Sometimes these red blood cells become sickle-shaped (crescent shaped) and have difficulty passing through small blood vessels.
When sickle-shaped cells block small blood vessels, less blood can reach that part of the body. Tissue that does not receive a normal blood flow eventually becomes damaged. This is what causes the complications of sickle cell disease. There is currently no universal cure for sickle cell disease.
I have lost my very lovely, loving and wonderful wife, my infant son and three brother in-laws to this disease. I t is so inexplicably painful; you only need to feel it to know it.
I believe that together we can make this world a better place for them to live without all the stygma, harrassment and hatred they are facing now.
1. I believe we can help make their lives a joy by loving them