"This is a wake-up call to the clinical community. Sickle cell disease is as common as cystic fibrosis, yet less is known about the severe complications that can lead to death in sickle cell disease patients. Around 12,000 people in the UK have sickle cell disease and it is one of the most common reasons for hospital admissions."
Dr Asaah Nkohkwo, chief executive of the Sickle Cell Society said: "I am appalled by the findings. They show how much of a gap exists in the delivery of the care services for sickle cell patients including the lack of knowledge of health professionals and the consequences that families affected have had to face as revealed by the autopsy reports."