I haven't given up on Oprah

Hello to everybody. I just wanted to let you all know that I haven't given up on getting Oprah to do a show on PWS. It has been an extremely hectic month. So now let's get the ball rolling again. I am getting a package together with a video to send to Oprah's…Read More

Your Vote Can Help Win Research Money For The Foundation For Prader-Willi Syndrome-Please Help and Vote. Please Help Our KIds.

To everyone who has a loved one or knows someone with Prader Willi Syndrome or just wants to help our kids please click the link below and view our video and vote to help our charity. Please click the "vote" button. For every vote we get they place an entry…Read More

Pictures for the PWS Video

We are working on a very special PWS video. I am calling on all of you :) For all of you who have a loved one with PWS please send me your pictures of them. We are working on a new project and we need their pictures. If you would like them to be involved we…Read More

Don't forget to join the fan page PLEASE!

Hi everybody, Don't forget to also join the fan page we have set up. I know that we can make our cause global. http://www.facebook.com/pages/I-am-a-Fan-of-Somebody-with-Prader-Willi-Syndrome/410689235692?ref=ts

A Mother's Message to her Angel

I always knew I would love you I loved you before the universe brought you to me They all dreamed of you, with your blonde hair and blue eyes You came to me I held you in my arms, I saw only perfection Perfection is all that remains You are flawless As I…Read More

Clarification about Pictures

I wanted to make sure everybody knew what I was talking about when I asked for your pictures. We are gathering photos of people holding signs saying something about PWS. They can be big signs, little signs, you can even write on your hand. They can say…Read More


Ok so I left everybody alone to celebrate the holidays but I am back. Let's all do our pictures please. You can look at my profile to get some ideas of what to do. There is a folder of pictures people have sent already. Please email your pictures to me at…Read More
See more
to comment