David definitely has severe Aplastic Anemia. He has been given permission to leave the hospital, which will take place tomorrow, and is going to return to his home. His condition is very serious, and the complications continue to grow. He is not allowed to leave home. He must continue to have intravenous injections every day, multiple times a day. He must be in a sterile environment the same as he would receive at the hospital, which, because he has no relative immunity to diseases or viruses, could mean that even unclean produce could give him a fatal illness. This is what will happen if David receives a bone marrow transplant. If there isn't a match for his marrow type, he will be forced to take his only other option, which is immunosuppressive therapy. If this doesn't work there is no option but to continue to wait for a donor with his marrow type. If it does work it is still not the end of David's illness. Throughout the rest of his life, David could be forced to take preventive measures against the things most people take for granted. If the bone marrow transplant works, he is still at risk of his body rejecting the new marrow and preventing new cells from being produced. This means even if either of his ONLY options work in the short run, there is an extremely high chance of it failing in the long run. With all this in mind, David will with the best of circumstances be hospitalized for this illness at different times throughout his life and he will never be free of the danger of the whole process starting over again at any time. To make it even clearer how rare this illness is, David is among a very small group of 300-600 people in the U.S. who have it. He will definitely be ill for months to years while the different methods are put into use, UNLESS and UNTIL one of his two options succeed.
When I first heard that David didn't have leukemia, I was very relieved, but now that I know everything that it will cost David and his family to pull through this ordeal, I feel overwhelmed, the same as I did when I thought he had cancer. When I began this group I wanted to be able to send the Azada's money to help with the cost of hospital bills and for whatever care David may require, but I have decided now against this. They do not want a charity group, or a meaningless bunch of cash. What they will really appreciate is a serious gift of hope. I want everyone who can to get a card or anything they can think of to send it to them. If this seems like too much to ask, especially if you do not know David or his family, I want you to think of how much better both you and the Azada's will feel to think that David has people who give a damn. Honestly, I have only ever given to charity when it was shoved in my face, and when the guilt of not donating would hurt me, but regardless of what this may sound like, it is not charity. What this is, is you as an individual helping another individual who would have most definitely done the same for you. A person who would have gone out of his way to help you if you needed it. All I ask, for David, his family, his friends, and his neighbors, is one card. All the more great of an act it would be if you could personalize the card with whatever you think would give him hope, because this will be a sincere struggle just to survive. Just think about it.
Every idea is welcome. If you want to send a card or anything else there will be an address posted either tomorrow or the day after.
If you feel like truly getting involved, beyond what I have mentioned above, send me an e-mail or a message here and we can discuss any possible ideas.
I know I have said this many times, but I am truly thankful to everyone who has decided to join and spread the word, as I know everyone who knows David is as well.