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New Edition of the Families of Spinal Muscular Atrophy Directions Newsletter.

November 25, 2013.

The Fall 2013 Directions Newsletter is now available. This Family Support newsletter is one way that we try and build our community to bring us all closer together by sharing stories and experiences. Families from all over the world connect with each other through Families of SMA to chat, organize, and share stories, photos, news, and information โ€“ and most importantly hope.

Click here to download the Directions Newsletter:

This 116 page new edition of Directions includes:
Information on the 2014 Annual SMA Conference in Washington, DC
Full Recap of the 2013 Annual SMA Conference in Disneyland
The Summer 2013 Edition of Compass
Many Family Letters and Pictures
Many Family Support Articles
SMA Awareness Month Photos
33 Pages of Fundraising and Chapter Updates

Knowing there are others out there fighting alongside you is incredibly empowering, and the advice and personal anecdotes can make a real difference in the lives of our families. And working together we have the strength to get us to a treatment and cure.

To submit pictures, articles or suggestions for the next issue of Directions Newsletter, please email [email protected].

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