About

Help fund research to find a cure for Batten Disease and other genetic brain diseases.

Nicholas has Batten disease also called Neuronal Ceroid Lipofuscinosis (NCL), which is a brutal and debilitating disease that attacks all functions of the body. Children diagnosed with this disease are missing a gene that is responsible for eliminating the build up of intracellular waste in the brain and central nervous system. Over time the buildup of lipofucins causes these affected cells to die. The death of these cells is devastating to the brain and body’s function as it causes seizures, blindness, dementia, immobility, and death in all affected children. The cruelest aspect is that these children were born with all of these functions intact and experience a rapid loss of function after a period of normal childhood development. Most children will die between the ages of 8 and 12 in the Late Infantile form, which Nicholas has. Nicholas turned 6 in May 2009.

1. A cure to Batten Disease is within our reach.

2. Scientific research must be funded before a cure can be found.

3. Only by taking swift action can children like Nicholas be saved.

4. Find out more at www.ourpromisetonicholas.com

Donations Go To

OUR PROMISE TO NICHOLAS FOUNDATION
a 501(c)(3) nonprofit (EIN: 26-4605606)