The Northeast ALS Consortium (NEALS) in conjunction with The
ALS Association is working to build a new, centralized resource for information
about amyotrophic lateral sclerosis (ALS) clinical research. As part of this initiative an ALS trial expert
will be immediately available to answer questions and help people navigate
through the clinical research information during regular business hours,
eastern standard time.
A long-standing collaboration between NEALS and The ALS
Association through the Translational
Research Advancing Therapy for ALS (TREAT ALS) program has built a
comprehensive infrastructure to improve clinical trial efficiencies. The availability and accuracy of clinical
research information is crucial to the development of potential treatments for
“The ALS Association is very pleased to provide funding for
this resource and looks forward to working with NEALS and the clinical
community to make information on all the important clinical trials more
accessible to people with ALS,” commented ALS Association Chief Scientist Lucie Bruijn, Ph.D.
With the support of The ALS Association, NEALS will lead a
coordinated effort to support people with ALS who wish to enroll in clinical
trials. This effort will include:
* The dissemination of
comprehensive, up-to-date information about ALS trials to the ALS
* Coordinated, searchable
online material about clinical research options,
* Frequent updates and news about
research, including informational webinars,...