Every so often, I let you know about a great project. Well, this is another one of those super projects that I am proud to announce! RSDSA takes pride and are very selective in the organizations it chooses to endorse and support. The Connecticut Pain Foundation is rising quickly in the ranks of pain community stardom -- and I'm not just saying that because I serve on the advisory board for CT Pain and am one of the featured models in this project, lol! They are going to have their first ever fundraiser and need help from people in the US, Canada, and around the Globe to make it a grand success! Please take a moment to read the following introduction letter I have put together to describe the project and how you all can get involved! If you have any questions, please contact me at the e-mail address below. Thanks to everyone in this group who are quick to jump in and lend a hand when I make these kinds of announcements. Hope to see many of you at the event! And no matter where you live, CT Pain serves EVERYONE in pain, so if you need help with anything regarding this project and/or CT Pain Foundation, do contact me at my CT Pain e-mail address below!
This is a note to everyone in the Pain community -- patients, families, and friends. I have a wonderful announcement to make, so keep reading! For those of you who are not familiar with the Connecticut Pain Foundation (http://www.ctpainfoundation.com/), allow me to take a moment to briefly tell you about this amazingly driven, up-and-coming pain organization. CT Pain Foundation was started in 2006 by an actual pain sufferer, Paul Gileno, who wanted to find other pain patients that shared common concerns and questions. CT Pain Foundation's primary goals are to raise money for research, education, and patient programs (ie: support groups, classes, etc.). CT Pain Foundation recognizes that pain patients may suffer far more than meets the eye, yet they have no way to explain it to those who do not suffer constantly from pain. And pain patients live with the stigma that they are exaggerating or even lying. It's common for a person in pain to hear someone say "you look too good" or "you're too young" to be in such pain. Even from some in the medical community. This just goes to show how much work we need to do to bring awareness to the public eye in this area.
That said, I am pleased to announce that the Connecticut Pain Foundation is several months away from its flagship fundraiser coming up in October. The event will be featuring a project called INvisible (http://www.invisibleproject.org/). In short, INvisible is a photo-journalistic portrayal of 15 people who live in pain while striving to live positive and fulfilling lives in spite of their debilitating pain and symptoms. Several pain-based conditions like Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome, Ehlers-Danlos Syndrome, Cancer, Multiple Sclerosis, and Juvenile Arthritis will be illustrated in this telling portrayal. The idea behind this project is to provide hope and healing to those living in pain, showing that it really can be possible to see and accomplish greatness in whatever pain patients set their minds to. INvisible will also educate those who do not understand what it means to live with an invisible disability, with pain and symptoms that often times cannot be seen by the naked eye.
In order to make CT Pain Foundation's flagship Invisible project a great success, we need people who may be able to help with the following:
1 )We need volunteers! Some volunteers can help from their own homes from online. We are also looking for people who live in the NYC Tri-State area who can come up to CT Pain Foundation in lower Connecticut to help us prepare for the big event! We need all kinds of help (ie: making name tags, putting invites together, etc.), so if you have a special skill and/or desire to be a part of the "behind the scenes" team of the...